Category: Akron Children’s Hospital

Things have gotten so much more complicated

Before I go into anything, I want to begin by saying that Gavin’s echocardiagram looks good. Everything appears to be normal and that’s really, really good news. Gavin did really well with the testing and was very cooperative. He even tried to carry on conversations with the staff. It was sorta awkward and unrelated to …

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Returning to Cardiology at @AkronChildrens Hospital today

Gavin and I will be heading off to Akron Children’s Hospital once again today. We were able to get an immediate appointment in cardiology and that’s crazy fast. This is a very important follow-up in regards to Gavin possibly having Marfan Syndrome. We’ve been down this road before but the doctors at Akron were very …

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The Life-Threatening Reason Gavin’s Surgery was canceled (video)

As you likely already know, Gavin was scheduled for surgery at Akron Children’s Hospital yesterday. Everything went as planned but we ran into a problem. I summed everything up in the video below because it was easier to talk about it than try to explain in writing. I’ll quickly explain what happened before leaving you …

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We’ve arrived at @AkronChildrens Hospital for Gavin’s procedures

Gavin’s a bit nervous but doing well. He’s very focused on the IV heading his way and is trying to talk himself through it. He brought a stuffed animal with him to help him be brave, his words not mine. We’re waiting for the doctor and anesthesiologist to come talk to us before they take …

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Please keep Gavin in your thoughts and prayers this morning

Gavin has now gone more than 24 hours without eating. For someone who loves their life around eat meal of the day, that wasn’t easy and it’s still going to be almost half a day before he’s able to eat. We will arrive at Akron Children’s Hospital in about 2 hours, and his scopes are …

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#Autism further complicates an already unpleasant situation

This is going to be a fricking nightmare. It already is. Gavin has begun the pre-op cleanse if you will. If that wasn’t bad enough, he’s not allowed to eat anything for at least the next 28 hours. For most people, a 28 hour fast would be very difficult. Gavin however, isn’t most people. His …

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