Category: Akron Children’s Hospital

The last time we were here, we received devastating news

Today is going to be one of the biggest days we’ve had in awhile, at least as far as Gavin and his health are concerned. Gavin finally gets back into Gastroenterology. We’ve finally come full circle and I’ll explain why. It’s been awhile since he’s been seen and that’s only… Read more »

When good news is frustrating 

      No Comments on When good news is frustrating 

I try to document our adventures as best I can, but not at the cost of being present in the moment with my family. Part of why I do this is because it helps to provide further context into our journey.  Yesterday, I had to get Gavin to Akron Children’s… Read more »

OMG.. This is taking FOREVER 

      No Comments on OMG.. This is taking FOREVER 

Gavin and I have been at Akron Children’s Hospital for two hours now. Not much has happened. Gavin had a basic eye exam and then some more specific testing as well.  We’ve spent more time waiting for someone to simply speak with us, then anything else.  My brain is still… Read more »

It breaks my heart every single day

      4 Comments on It breaks my heart every single day

After taking the boys to school, we will return home for a short while before heading to Akron Children’s Hospital. Lizze will be staying home cause she has a doctor’s appointment of her own.  Gavin and I will be making the trek to see his eye doctor, in order to… Read more »

Here’s the good news

      4 Comments on Here’s the good news

I wanted to let you all know how Gavin’s eye appointment went today. The reason he was going, aside from needing his glasses prescription stronger, is that he’s having vision problems that can’t be fixed with glasses. Before he went, I had him write down all the problems he’s experiencing,… Read more »

You won’t believe what the worst part of the eye appointment was for my son with #Autism 

It’s been such a long day and I’m sure you’re all surprised to hear that I’m exhausted. I feel like I’ve been on the go for most of the day and spent all my remaining energy along the way. 😁  For this entry, I’m going to focus on Emmett’s eye… Read more »

We arrived at @AkronChildrens 

      2 Comments on We arrived at @AkronChildrens 

Emmett and I arrived at Akron Children’s Hospital to have his eyes checked out. He’s due for a check up but he’s having a hard time seeing. He also just told me that he’s had a few times where his vision in both eyes has gone totally black.  I wasn’t… Read more »