Read more about the article Gavin’s IVIG infusion is NOT going well
Common Variable Immunodeficiency / Gavin / Immunology / IVIG Infusion / Vivint Gives Back

Gavin’s IVIG infusion is NOT going well

Gavin's IVIG infusion is not going well this morning. For some reason, we can't get any flow and I'm having to force the solution through the tubing manually. It works but it's very difficult and quite painful for a Gavin. I don't know what's wrong for sure, but it could be scar tissue. All I can do is continue to force it through or re-stick the needles in his belly. Gavin wants to avoid being re-stuck and I don't blame him. Hopefully, this will finish up sometime this afternoon and he will be okay. I'm just going to keep an eye on him through the Ping camera from Vivint Home. I've found so many uses for this system but the best have involved using the cameras to monitor my kids…

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February 26, 2018
Read more about the article A significant increase in security at my kids school today
My thoughts / School Related Issues

A significant increase in security at my kids school today

The boys did awesome this morning. They got ready for school and out the door with very little effort, at least compared to what it's been like recently. I took them to school and when I dropped them off, I noticed a major change at the door. Every child is scanned for metal objects prior to entering. This is totally new and I was sorta taken a back by this at first but then I was forced to remember the reasons behind this. I'm angry that something like this is necessary but I'm grateful that the proper precautions are being taken in order to help insure the safety and we'll being of our kids. So far, there have been several changes within the school to address possible safety concerns. I…

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February 26, 2018
Read more about the article Childhood Disintegrative Disorder is stealing our son from us
Childhood Disintegrative Disorder / Gavin / My thoughts

Childhood Disintegrative Disorder is stealing our son from us

This post was started on Friday and has taken me this long to finish. It's been a long weekend and I apologize for my absence. I was largely absent here today because I'm struggling a bit right now. I'm having a hard time coping with certain things at the moment, Gavin being one of those things. I'll be the first to admit how terrible that sounds. I can assure you, it feels worse for me to say that. Gavin is driving me crazy and it's taking a toll. As time moves forward and his overall condition worsens, it becomes harder and harder for him to think. He has a much more difficult time trying to think his way through even the most one dimensional situations. These are things like figuring…

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February 26, 2018
Read more about the article How my son with #Autism blew me away tonight
Emmett John / Gallery / My thoughts

How my son with #Autism blew me away tonight

We had a really nice evening. Truth be told, it was actually extremely stressful for me but that doesn't mean there weren't some awesome memories made. I'm just going to skip to the end of the day because that's where the true magic happened. I took Lizze and the boys out to dinner. We don't do that very often for a number of reasons but we went to IHOP for dinner because everyone loves it there. ☺ Everyone ordered what they wanted and had a great time. The truly amazing part comes into play with Mr. Emmett. Emmett is historically very difficult to feed. He so many sensory issues and it makes him incredibly sensitive to things like food. Anyway, it's a struggle on the best of days and a…

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February 24, 2018
Read more about the article I’m doing my best to survive
My thoughts

I’m doing my best to survive

The boys got off to school on a good foot. They were cooperative-ish and made it to school on time. Unfortunately, my back is out. When I say out, I mean it's the worst it's been in many years. It's the kind of pain that makes it hard to breathe. I'm looking for things I can do to help myself become a bit more resilient and someone recommended I check out https://www.fixbodygroup.com/palm-desert-ca/medicare/chiropractor/. Thankfully, Lizze was more than willing to take the boys to school for me and that saved me a great deal of grief. I'm going to try and rest today because there isn't anything going on. The best thing for me to do is bounce between resting and walking. Walking is the only thing that's ever worked for…

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February 23, 2018
Read more about the article I’m so angry and I need to vent
My thoughts

I’m so angry and I need to vent

I'm really frustrated tonight and much as I try to not succumb to the negative feelings, I'm unable to at this point. I put so much time, energy, heart and soul into this blog. While I'm able to help support my family through ads and sponsored posts, the main purpose has always been to help others. Writing is therapeutic for me and without it, I don't even know where I'd be. Unfortunately, it appears that someone from my family's past has resurfaced recently. I know that because we received a lovely message on Facebook, that I can't help but take as a threat. I was the main target but Lizze and I were both mentioned. The message arrived on Gavin's eighteenth birthday and if you have been around from the…

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February 23, 2018
Read more about the article We had a massive, massive meltdown
Elliott / Meltdowns / My thoughts

We had a massive, massive meltdown

It's not been a good morning so far. To start things off on the wrong foot, I stepped funny coming down the stairs and jarred my back. You may recall that I suffered a major back injury many years ago. Most of the time I'm okay and I've adapted to the pain however, it doesn't take much to aggravate it again. I totally succeeded in doing that this morning. I'm in so much pain right now, I feel like I'm going to puke. Once I lay down for a little while, this will hopefully start to improve. To make matters that much more stressful, Elliott had a massive, massive meltdown this morning. He's really struggling emotionally and today was in regards to not wanting to take his morning meds. He…

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February 22, 2018