Autism Archives - Page 451 of 715

UPDATE: Gavin was in the hospital today and here’s what happened

Update: I was so frazzled when writing this that I forgot to thank all of you for all the love, support, thoughts and prayers that were sent our way today. It actually means a great deal to us. ☺ There are times I wish I could just speak to my readers directly because it would so much easier to talk than write. Sometimes I struggle with putting words to my emotions and frankly, that is why I don't write more than I do anymore. I'm overwhelmed and lacking the energy to say all I need to say. Please bare with me as I try to explain what happened with Gavin today and do so in a way that makes sense. It's best I start at the beginning. I woke…

6 Comments

December 13, 2016

Gavin / Thoughts and Prayers

Gavin’s in the emergency room please keep him in your prayers

We're waiting to go back, but I wanted to take a minute and ask that you keep Gavin in your thoughts and prayers. Currently were at the emergency room because Gavin has been experiencing something going today that could end up being very serious, especially with a compromised immune system. Essentially, Gavin's been peeing blood today, and we aren't sure why. Gavin's story has been shifting today, and so we aren't entirely sure what's going on. At first, we thought he was popping blood and so we called his doctors to find out what to do. Then later on in the morning, Gavin informed us that he hadn't pooped today at all and that he was peeing blood. He didn't think it was important enough to tell us…

1 Comment

December 13, 2016

Bullying / Elliott / My thoughts

Great news about the school day today

We had to pick the boys up from school and then run to the other side of town because Lizze had a doctor's appointment. While Elliott's in a bad mood because he's hungry, he was able to deliver piece of really good news. When I asked him how his day was and if there were any problems, he said good and no problems. In other words, it sounds like he had a bully free day. I can't tell you how much I needed to hear something like this today. I'm so relieved that our efforts have produced a positive outcome, at least for now. ☺

0 Comments

December 12, 2016

Emmett John / Sensory / Shoes and Socks

I don’t know what we’re going to do

We had a really difficult morning because Emmett would not tolerate shoes or socks once again. I went last night and tried to find new socks that he might be more comfortable with but he wouldn't even try them on. This morning however, he was finally able to put on one of the pairs of new socks but would not tolerate any type of shoe over top of them. After about 90 minutes of exhaustive effort, we finally got him to wear his slippers. He wasn't happy about it but it happened. The battle to reach that point was horrible. The screaming was overwhelming for us but the whole thing was beyond overwhelming for Emmett. This thing is heartbreaking and I don't know what else to do. Nothing works. …

14 Comments

December 12, 2016

Emmett John

Today’s Victory: Guess who slept in their own bed last night?

After the little hiccup we had over the weekend, Emmett fell asleep in his own bed again and that's not only awesome but a big relief. I was worried that he was going to start sliding backwards but he's back on the wagon and I couldn't be prouder. I'm hoping this trend continues and we can file this particular challenge under overcome...... ☺

2 Comments

December 12, 2016

General Update / My thoughts / Reunification

UPDATE: Seven months after my wife moved back home…..

It's been seven months since my wife and I put our family back together. For those tardy to the party, we spent about twenty months apart after she suffered what our marriage counselor calls caregiver burnout, along with what turned out to be undiagnosed bipolar disorder. I'm not going dredge through the past at this point but it's important that we're all on the same page. Since Lizze moved back into the house with myself and the boys, things have been going well. There hasn't been any downside to having our family back together as far as we're concerned. The boys have not had much trouble adjusting and Gavin is still doing phenomenally well on a behavioral level. Lizze and Gavin have a relationship now that is amazing. It's healthy…

4 Comments

December 12, 2016

Emmett John / My thoughts

Well shit, I just had to open my big mouth

Last night was a long night and I only have myself to blame. I recently shared how Emmett was falling asleep in his own bed and we thought we'd finally worked through our bedtime troubles. Unfortunately, it seems that in my excitement over our perceived victory, I jinxed us. I spent the night on the couch once again because Emmett wasn't able to sleep. Lizze was still sick and so Emmett and I ended up camping out in the living room. It was a long night but I did get to sleep today, courtesy of my awesome wife. Perhaps next time I'll not claim a victory so early... ☺

0 Comments

December 11, 2016

My thoughts

A heartbreaking conversation with my son (audio)

It's been a little while since I talked about how Gavin was doing. I will very, very cautiously say that things might be improving a tiny bit for Gavin and here's why. It seems that we have gotten the bladder control issues under control. I don't know that I've actually heard him say anything about it in at least a week or so. He still tends to have problems during his Infusions but that's about it. The medication he's taking to relax his bladder seems to be doing the trick. Of course, it could also be that he's been back down to only 600 mg of Clozapine per day for a few weeks now. I think that helped. On the backside of all this, he's still struggling with psychosis…

4 Comments

December 11, 2016