Parenting Archives - Page 59 of 721

I stepped outside of my comfort zone and spoke my mind because it matters

I've said this before and while it may not appear this way on the surface, I'm way too self-conscious to enjoy appearing on TV. That said, I've been doing it anyway because some things are more important than my comfort level. I will continue to do so when the opportunity presents itself because I want to make a difference and do my part. Today was one of those days. I was asked by my friends at ABC News Live to speak again, but this time to how I feel about the current status of COVID19 and the news of Donald Trump being infected. I know many like to steer clear of politics but unfortunately, we no longer have the luxury of standing on the side lines, pretending like everything is…

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October 5, 2020

My thoughts

We’re without a car for a few weeks

We are officially without a car for the next few weeks. I dropped it off at the body shop this afternoon and my Mom was kind enough to bring me home. It was a bit weird because I've not been in a car with anyone other than the kids in 2020. The ride was less than 10 minutes. We kept the windows down and we both wore masks. I had my KN95 and my main cloth mask on cause I normally keep them in the car and I wanted to bring them home in case I needed them. I wanted to protect my Mom and myself and my kids, so we took this brief ride very seriously. I'm so grateful that my parents are there to help when I need…

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October 4, 2020

Akron Children's Hospital / Gavin / My thoughts / Pediatrics

Round 3 of blood work for Gavin

It's been a long day but a pretty good one. I didn't write yesterday cause I was not really in a place where I felt like writing. I spent the time connecting with other parents instead and that was really cool. Yesterday, I had to take Gavin for another round of blood work, this time focusing on his liver. I hate doing this because it puts us in contact with other people but it was a necessary evil. Gavin's levels have been off and we have to keep following up until we figure it out. I needed to get this done ASAP because the car goes into the bodyshop this weekend and I'll be car-less for a few weeks. Gavin has an appointment with gastro coming up and we need…

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October 3, 2020

COVID19 / Link / Lockdown / My thoughts / Remote Learning / School

Remote learning is going okay but I’m maintaining perspective

Moving on.... So we had a pretty decent day today. Elliott had to get his Chromebook swapped out, so Lizze and her Mom picked that up and took care of that for us. That was super helpful and I'm grateful. School is going better and the boys are starting to get into something that when you squint, sorta resembles a routine. At best, it's a bastardized routine but progress is progress. I'm not going to apologize for letting my kids be comfortable while they're learning. This whole thing is a nightmare and I have zero concerns about them chilling on the couch, bed or anywhere else that makes learning a positive thing. As long as the kids are appropriately dressed, in good lighting and they're teachers are happy with their…

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October 2, 2020

My thoughts

For fuck’s sake, enough with the judgement already

We had a pretty good day. Emmett had a rough start and missed his first class of the day but recovered and did fantastic. Elliott did awesome as well. Unfortunately, he's experiencing some technical difficulties with the connection to the school but their tech support is looking into it. Tomorrow is an offline day for Emmett, meaning he doesn't have any live online classes but he uses the time to work on his school work and cna meet with his teachers should he need extra help. Okay, I'm going to stop here because I feel there are some things that need to be addressed. I have my share of trolls and I've been trying to let most of the comments stand lately but sometimes, they're so mean spirited that I…

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September 28, 2020

My thoughts

A slight hiccup to the start of our day

First of all, I love waking up in the morning with my balcony door wide open. The morning sun shines right in and it's just a good start to the day. I've not been sleeping well lately and getting up in time to get the kids to school isn't easy. On this particular morning, Mr. Emmett is under the weather. He's dealing with nausea and I think it's due in part to post nasal drip, with a heaping helping of stress on the side. Anyway, he's struggling a bit and I called him off from his first class this morning. I'm hoping that a slower start will help him work through this and get back to school in time for his second class. I got him setup on my bed…

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September 28, 2020

Link / Major Update / My thoughts

A Ginormous Update

Alright folks, I'm playing catchup here and this will be a rather large update. So buckle up, it's a couple pages. First things first, I feel like we had a pretty decent weekend. The boys had a great visit with their mom and aside from a few hiccups with Gavin related behaviors, it seems like a very positive experience. That's awesome. They adjusted to being home in short order and picked up life where they'd left off before their trip. We spent some time working on the house. The boys want to bolster our security, as do I, because of all the recent shootings in our neighborhood. Just the other night, there were three woman shot while they were sitting on their front porch. I heard the shots but didn't…

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September 27, 2020

Gavin / My thoughts / Probably Genetic

It’s incredibly frustrating when the answers you get aren’t the answers you want

I met with Gavin's genetic counselor this afternoon, to go over the results of his exome sequencing. This has been a long time in the making I want to give a huge shout out to Probably Genetic for all their help. Essentially, what I learned is that we really didn't learn a whole lot. I say that because we didn't find answers to the many questions we've had for a very long time. That happens and it's for one of two reasons. The first reason being that there's nothing wrong and the second being that science simply hasn't identified everything yet. There are limits to our scientific knowledge but as that knowledge expands, answers may appear as the data is reinterpreted. When I say we didn't learn anything, that's not…

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September 26, 2020