Sometimes I get really frustrated

Lizze and I ended up doing absolutely nothing but binge Netflix while the kids were gone. The trip with my Dad to retrieve some things for my grandma was postponed until next weekend. I'm waiting on a deposit, and until then, things are incredibly tight. There was no option to go do anything, even if we had the money because Lizze wasn't feeling well. I did go walking and spend some time with my grandma, but that was about it. Sometimes it gets frustrating because it would be so nice to have the ability to go do things that many other families get to do. There's always something that prohibits or limits our ability to do these things. Usually, it's money related, or someone isn't feeling well. There are times…

3 Comments

I’m hoping this helps my grandma

We have a busy and emotionally draining day planned. First of all, the boys are going to spend the night at their grandparent's house. It's been a long week, and this break is both desperately needed, as well as greatly appreciated. I might not be here for most of it because my Dad and I are making the out of town drive to my grandmother's house. She's permanently moved to a nursing home by us, and we want to bring some of her things back so she can have them in her room. We hope that being surrounded by familiar things will help her not only feel more at home but also help her with her worsening confusion. She frequently calls me in a complete panic because she doesn't know…

0 Comments

I’m worried about my oldest

Gavin's having a rough day. He's spent almost the entire day in his room running intense missions. The reason I bring this up is because while Gavin's schizophrenic, he's also Autistic and is very much a creator of habit. He has very specific routines that he follows and if they get disrupted, he is not a happy camper. Routine disruption can be challenging for people with Autism, and Gavin is not exception. So far today, Gavin has ignored most of his routine in lieu of managing a crisis in the Universe he's transported to when he walks through his bedroom door. He's very much on edge and not wanting to tell us anything about it. I'm a little worried because, on any other day, we literally can't get him to…

3 Comments

Pictures from yesterdays therapeutic martial arts promotion

The boys had their end of the school year martial arts promotion yesterday. Both Elliott and Emmett did awesomely. Elliott was promoted to blue belt, and Emmett was promoted to high blue. Lizze and I couldn't possibly be any prouder of them than we are. I posted some video on my Twitter feed yesterday and you can check that out by clicking here. I wanted to let you know how things went and share a couple pictures of the boys from yesterday.

2 Comments

Today’s a big day for the boys

The school year is just about wrapped up. We're finishing the last full week of school for this school year and today is the boy's final martial arts promotion. Emmett will be going first, and his promotion lasts about an hour. Elliott will go next but not for two hours after Emmett finishes. We're going to have a bit of time to kill around lunchtime before we return and watch Elliott get his promotion. This is always an exciting experience, and there is no one more excited than Gavin. He gets so happy to see his brothers doing their martial arts, as well as spending time at his old school. Gavin's a very proud big brother. 😀 Emmett takes this very seriously because he's very much into martial arts. Elliott,…

0 Comments

Today just keeps on giving

It's been another long night, and I'm just now getting around to writing anything. Mr. Emmett is all sorts of miserable because of his current fever flare, resulting in painful mouth sores, and is not very pleasant to be around at the moment. I can't really blame him. He's in a shitload of pain. This will be day two of the increased dose of his anti-virals, and we're hoping this helps to provide him with relief as soon as possible. Lizze's had a doctors appointment this morning, and as a result, I was not able to go walking until after lunch. Gavin's been keeping to himself for most of the day, and the times I have seen him, he's barking orders for things he wants me to get the next…

0 Comments

My 19-year-old #Autistic son totally impressed me

When Gavin was younger, he was admitted to the psych unit at Akron Children's Hospital more times than I can remember. It was always a last resort but a necessary action when things got really bad, and he needed acute stabilization. Anyway, Gavin's doing so much better now, but he's beginning to struggle once again. Most of this struggle revolves around him, managing his frustration. It's not easy for him because he's very easily frustrated and often has unrealistic expectations of himself. The other day, Gavin came downstairs and wanted to show me something. He'd been straightening up his room and came across one of his old folders from a psych stay at Akron Children's. Inside it, he found some of the work he'd done while he was there. In…

1 Comment

There’s no chance of that happening today

I didn't sleep very well last night. I'm really feeling stressed out, and I woke up almost every hour throughout the night. My brain was just churning out endless amounts of worry, and it kept waking me up. I was able to get the boys off to school on time and then go for my walk. Ruby, of course, went along with me. When I got home, I was able to work on a little writing before having to take Lizze to an appointment before lunch. Halfway to her doctor's office, the school called, and Emmett needed to be picked up. He apparently has a very bad mouth sore and was unable to make it through the day. He almost never comes home for these anymore and the fact that…

0 Comments