Read more about the article It’s tough to have your child scream at you :(
Emmett John / My thoughts / PFAPA

It’s tough to have your child scream at you :(

It's been a really long and emotional day. This flare that Emmett's enduring right now is really kicking his butt.  He's started biting his upper and lower lips today and so now he's got these red sores that almost look like chapped lips but I'm not sure that's what they are.  Anyway, today has been spent trying to make him comfortable.... Advil and numbing cream on his lips and Oragel for the sores in his mouth. Thankfully, it looks like he only has one so far but honestly, one is enough.     I did get him to eat a little bit of Mac and Cheese but he really hasn't been hungry today.  It should go without saying that he's been rather grumpy and by grumpy, I mean he screamed at…

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August 16, 2015
Read more about the article Emmett could use some thoughts and prayers tonight
Emmett John / PFAPA / Thoughts and Prayers

Emmett could use some thoughts and prayers tonight

Poor Emmett. He just can't seem to catch a break anymore.  For those who aren't aware, Emmett's been dealing with a rear fever disorder known as PFAPA. I'm gonna let you follow the link and read about it yourself because I'm really tired and only have a few minutes.  It appeared as though Emmett had outgrown this disorder because the cycles just sorta stopped or at least the most obvious symptoms did.  While he spent most of last year pain free, the cycles have once again reared their ugly head.  Emmett finished a cycle about two weeks ago and has began another one today, right on schedule. 😔 He's absolutely miserable.    The above image shows what these mouth sores look like.  As the 10 day cycle progresses, these sores…

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August 15, 2015
Read more about the article I’m so grateful my kids let me rest this afternoon
My thoughts / Today's Victory

I’m so grateful my kids let me rest this afternoon

I'm so grateful to the boys for letting me nap a little bit this afternoon. I haven't been feeling well since I got up this morning. I don't know if it's something I ate or if it's a stomach bug but I've been really nauseous and I can't get rid of this headache.  For the most part, the kids have been great.  Emmett's entered into another fever flare and so he's hardly eaten anything today because his mouth hurts too bad.  He's really sporting a short fuse at this point but I certainly can't blame him. He's got to be absolutely miserable.  I'll write more about the flares in another post later on but the whole point is that all things considered, the boys have done really well today. I'm…

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August 14, 2015
Read more about the article I’m really close to losing our house
Confessions / My thoughts

I’m really close to losing our house

I suppose the title says it all.  I'm pretty close to losing our house and the reason I'm sharing this is because it had an impact on a really tough decision I made today.. Anyone that truly knows me knows that I take my family very seriously. It's my responsibility to provide for them and no one else's. My goal is to be as physically and financially independent as humanly possible. That's always been my goal.  I was able to meet that goal for long time, until I got hurt and things slowly unraveled from there but that's really kind of irrelevant at this point.     Once upon a time, I would have been more upfront about this because I believe that I'm far from the only special needs family…

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August 14, 2015
Read more about the article Here’s my Photo of The Day: Too stinking Cute
Picture of the day

Here’s my Photo of The Day: Too stinking Cute

I am a closet photographer and I've recently begun sharing the pictures I take in Instagram. You can see my gallery and follow me, directly from my home page.  Freezing moments in time has become something I truly enjoy doing and I find it incredibly relaxing for me.  I snapped this picture of Emmett, who once again snuck into my bed. He brought along his glasses, tablet and Ms. Cleo the cat. This was just too precious to not share and so it's become my photo of the day.. 😀   

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August 14, 2015
Read more about the article I’m fighting a stomach bug today
My thoughts

I’m fighting a stomach bug today

Emmett was up until almost 2 am and both Elliott and Emmett were awake by 5 am.  I'm dying right now because I'm exhausted and fighting off a stomach bug that has me trying not to puke.  It's going to be a really long day.  😒   

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August 14, 2015
Read more about the article The boys and I had a little mission today
My thoughts

The boys and I had a little mission today

My parents are taking care of a relative who's having some health issues today and asked if the boys and I would stop by and take care of the dog. My cousin is living there now but was going to be at work. After lunch, the boys and I went to go let Bailey outside and give him something to eat.  I never liked Bailey for some reason but since their other dog died a couple of years ago, he's really grown on me.  Bailey's getting old and doesn't like to be alone, even for a little while so we decided to take him for a walk before we left. He had fun and so did the boys. I'm trying to instill a sense of responsibility in my kids. Helping…

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August 13, 2015
Read more about the article The return of Gavin’s meltdowns
Gavin / Meltdowns

The return of Gavin’s meltdowns

Gavin's really starting to struggle once again. Behaviorally he's doing quite well but his level of function is declining and it's not hard to notice. He's not hearing the thing s that are being said to him and his threshold for frustration is extremely low at this point. That means that he get frustrated very easily.  As an example of what I mean.  Gavin was wiggling back and forth on the couch. This is basically his version of the potty dance. I simply asked him if he needed to use the bathroom and he jumped up and got very upset.     He made his body very stir and started bending his fingers back to the point where I'm amazed he didn't snap them off. Then of course, there's the stomping…

7 Comments
August 13, 2015