I have some good news and some bad news

I have some good news and some bad news


This is a good news/bad news post because there is good news and some bad news.  I’m going to begin with the bad news because it will make the good news make more sense. 

I shared earlier in the week that Gavin’s IVIG Infusions haven’t been going well. 

In an attempt to counter this issue, we switched to larger bore tubing. This should have increased the speed with which the infusions took place. 

image

Unfortunately,  after consulting with his immunologist, the likely cause is scare tissue from about 500 needle sticks to the left and right of his belly button, since beginning the at home IVIG a couple years ago. 

The good news is that there is a solution. 

The solution is to place the infusion needles in an alternate location.  There are currently two locations possible and neither are pleasant.

The first possible location is in his upper butt/lower back. The final location is the outside of his upper thighs. 

Gavin’s not excited about either. 

The only other option is to return to the Akron Children’s Hospital infusion lab in order to have the 6 hour IV infusion done once a month. 

Gavin has almost no body fat which makes these subcutaneous infusions rough. 

He has elected to use his thighs on Monday and I’m not sure how that’s going to go. 

I will say that Gavin’s got a great attitude about this change and while he’s scared, he doesn’t want to go back the actual IV infusions at the hospital.

We’re going to numb his leg up really good before trying this new location.

With any luck, this will go smoothly and at least relatively pain-free…. ☺

0 0 votes
Article Rating
Subscribe
Notify of
guest

Yes, I would like to receive emails from The Autism Dad. Sign me up!



By submitting this form, you are consenting to receive marketing emails from: Business Name. You can revoke your consent to receive emails at any time by using the SafeUnsubscribe® link, found at the bottom of every email. Emails are serviced by Constant Contact

This site uses Akismet to reduce spam. Learn how your comment data is processed.

6 Comments
most voted
newest oldest
Inline Feedbacks
View all comments
Guest

I find butt to be less painful than thigh but with that quantity of fluid it might make sitting kind of sucky.

Guest

Hope it works out.

Guest

Positive thoughts coming your way. stay strong all for you.

Guest

I find butt to be less painful than thigh but with that quantity of fluid it might make sitting kind of sucky.

Guest

Positive thoughts coming your way. stay strong all for you.

Guest

Hope it works out.

6
0
Would love your thoughts, please comment.x
()
x
%d bloggers like this: