Has anyone faced this bizarre #sensory processing issue before? 

Recently, Emmett has been struggling a great deal more with eating.

If you’ve followed our story for awhile, you might recall that we have an enormous challenge when it comes to Emmett and eating. He’s extremely sensory oriented and struggles with things like food, clothes, noise and shitload of anxiety. The anxiety serves to make everything worse.

Anyway, Emmett has a very small menu of foods he’ll eat, and that makes it challenging to feed him.

He’s very sensitive to things like taste, smell, color, shape, packaging, presentation and imperfections. It’s not uncommon for me to have to remake something a few times because something about it wasn’t right.



Recently, Emmett has begun saying things like, this doesn’t taste right. The problem is, what doesn’t taste right, happens to be one of the few things he’s historically eaten.

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Rob GorskiPamela Rundall MariGwen JorgensenCLeigh Forbes Recent comment authors

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Gwen Jorgensen
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I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w

Vanessa
Guest

My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK

Tara Dresbach
Guest

Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s

C
Guest
C

Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?

Leigh Forbes
Guest

@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228

Leigh Forbes
Guest

@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!

Gwen Jorgensen
Guest

I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w

Vanessa
Guest

My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK

Rob Gorski
Guest

I can absolutely relate to this. We struggle with the same thing.

Tara Dresbach
Guest

Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s

Rob Gorski
Guest

Thanks Tara. That’s what I was thinking as well.

C
Guest
C

Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?

Rob Gorski
Guest

His meds haven’t changed in a long time and while there may be more subtle things I’m not aware of, he’s not brushing his teeth before eating…

Rob Gorski
Guest

The food itself hasn’t changed as well..

Pamela Rundall Mari
Guest

Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.

Leigh Forbes
Guest

@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228

Rob Gorski
Guest

It’s entirely possible but to my knowledge, nothing like that has happened…

Leigh Forbes
Guest

@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!

Pamela Rundall Mari
Guest

Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.

Rob Gorski
Guest

Here’s the thing. Emmett has a rare fever disorder called PFAPA. Traditionally, he’d run a high grade fever for about 10 days but not actually be sick. He had surgery when he was younger to try and help with this debilitating condition. The high grade fevers were reduced but new symptoms emerged.

Now he breaks out in painful mouth sores, inflamed joints and major mood swings.

Every once in awhile, his symptoms shift and new symptoms arise.

You may be absolutely correct in your assertion but I suspect the thing brewing, is a new symptom of his fever cycles.