My son with #Autism is driving me crazy today – Here’s why



Gavin is having one of those days where he drives me absolutely crazy. The level to which he’s driving me crazy today would be impressive, if it wasn’t for the fact that he’s driving me crazy. 

The latest mile down the road to crazy he’s taken me on, has to do with his IVIG Infusion. 

We got his infusion started over an hour ago. I had to work with him because he was paranoid the infusions sites were leaking. I assumed him that they weren’t and I explained that it’s good to check things out if he thinks something is wrong but worrying too much isn’t a good thing. 

Between his excessive fear of the infusion site leaking and his desire to get his game started on the Playstation, he overlooked something g really important when it comes to these IVIG infusions. He forgot to turn the flipping pump on.. 😯



As it turns out, he’s been sitting there for over an hour, obsessing over the idea that it was leaking, and the dang thing wasn’t even turned on. Nothing can leak of it’s not turned on.. 

This little oversight is going to push the whole evening back, at least an hour or so. 

Am I angry? 



Of course not! 

Am I frustrated? 

Damn right I am!

We had agreed that he could check to see if it was leaking, every 5cc’s. This way he could check and feel better, while not obsessing over it. 
He’s been checking for over an hour and didn’t notice that the infusion wasn’t moving. It wasn’t until I double checked things, that he realized he hadn’t turn the pump on. 

Recommended Read  Why good news doesn't always make me feel better

I made him turn the video games off because he was hyperfocused on playing his game and failed to notice something was wrong. 

He needs to be able to manage as much of this process as possible and if there are distractions that are taking his focus away from the task at hand, we simply remove the distraction. 

I know he’s capable of this, so handling it this way will help to remind him to prioritize things. At least I hope it helps, but who knows. 

Either way, our day is winding to a close and I’m really looking forward to some down time tonight. 

What do your kids do that drives you crazy? 

Leave a Reply (Login to the site or comment as a guest)

Be the First to Comment!

avatar
  Subscribe  
Notify of