I’m a frustrated #Autism Dad, and here are a few reasons why



I’m feeling frustrated because so far, the summer isn’t going how I’d like it to. I wanted to keep the kids moving, and have fun, but that’s not happening as much as I want it to. 

Emmett’s is in a flare, for the second time since school has been out, and that tends to dictate what we can or cannot do. It involves a great deal of sleepless nights, screaming, and fighting to get him to eat anything. It’s exhausting, and seems to last forever. 

When he’s feeling good and wanting to do something, Elliott will be in a place where he doesn’t want to do anything. 

Each of the three boys have very different special needs, and they are often in conflict with each other, making life especially difficult. It’s hard to do anything, because this is like an endless cycle. 



If there’s a time where the E’s are in sync with each other, and wanting to go do something, Gavin will be experiencing some health issue, limiting our ability to do things. 

This isn’t what I wanted for this summer. 



Lizze isn’t doing so good right now. The weather has been rough on her, and the chronic pain is wearing her down, making her anxious, and constantly exhausted. Even if I get all the boys on the same page, Lizze is often unable to go with us, because she’s too tired, or in too much pain. 

I totally get it, and certainly don’t blame her, because it’s not her fault. At the same time, it can get frustrating at times. 

We’ve already had quite a few unplanned things arise this Summer, and it’s going to limit the things I can do. 

Lizze has to permanently go on a very restricted diet, and it’s likely that Gavin will have to follow. This is putting a huge strain on our already limited grocery budget. Unfortunately, there’s no way around this aside from increasing my income to compensate, and that adds even more stress. 

I’d really like to have things go smoothly for once. If I could get everyone in the same place at the same time, maybe that would be possible. Unfortunately, it’s the getting everyone in the same place at the same time part, that’s proving to be a major obstacle. 

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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Judi Freed (@jaflady)
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That sounds so very difficult your frustration is very understandable. It is a lot to cope with so many different patterns and needs. Being the Rock can be exhausting. I hope you can carve out just a bit of time for you and maybe with each other separately. In the best of circumstances everyone all together seldom works out like the pictures in our heads – in the most well-meaning and together families it is the same.

Judi Freed (@jaflady)
Guest

That sounds so very difficult your frustration is very understandable. It is a lot to cope with so many different patterns and needs. Being the Rock can be exhausting. I hope you can carve out just a bit of time for you and maybe with each other separately. In the best of circumstances everyone all together seldom works out like the pictures in our heads – in the most well-meaning and together families it is the same.

Unable Pown
Guest

Is there no way to get disability or food stamps or something to cover the special diet with a doctor’s note or something?

Unable Pown
Guest

Is there no way to get disability or food stamps or something to cover the special diet with a doctor’s note or something?

kimmy gebhardt
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kimmy gebhardt

I have a question about your food budget. Is your diet helping in that area? It would stand to reason that the less you eat the less you spend. Also, you’ve mentioned Slim Fast and a few other things you eat and they are all name brand. Does anyone make generic forms of the things you are using to help you with your diet? I know this is a somewhat simplistic approach to a difficult problem, but every penny counts when you are trying to stay within a tight budget. Just some food for thought. : )

kimmy gebhardt
Guest
kimmy gebhardt

I have a question about your food budget. Is your diet helping in that area? It would stand to reason that the less you eat the less you spend. Also, you’ve mentioned Slim Fast and a few other things you eat and they are all name brand. Does anyone make generic forms of the things you are using to help you with your diet? I know this is a somewhat simplistic approach to a difficult problem, but every penny counts when you are trying to stay within a tight budget. Just some food for thought. : )