Why he keeps forgetting the most basic things

Lately, Gavin’s memory has been getting significantly worse. It was little things at first, like losing his shoes. When we went to the grocery store, he could find the items that I had always been able to send him for, and everything was in the same exact place. 

We’ve moved to more serious things now. 

The other day, when the boys came back from their Grandparents, Gavin just stood outside the front door. We have keyless entry, and all he has to do is put the code in, and the door unlocks. 

I had to go open it for him because he forgot that he could let himself in. In fact, he didn’t even see the keyless entry. 

When I asked him why he didn’t let himself in, he got really upset with himself because he forgot that we had keyless entry. He was staring right at it, and still forgot. 

I’m worried, but there isn’t anything we can do. This is part of the overarching effects that Childhood Disintegrative Disorder has. The only thing left to do is put more visual reminders up for him, and hope that helps. 

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kimmy gebhardt

I’m sorry that Gavin is having difficulties. It sounds so similar to the beginnings of dementia that older people face; I have a hard time seeing it in my older family and friends so I can’t even imagine what it’s like to see your child regress. I feel like the only saving grace in situations such as this are that the person losing their memory isn’t always completely aware of it. In Gavin’s case, he doesn’t seem to realize that he’s not your average 17 year old and enjoys his life as it is. On a related note, did you ever put together a proposal with Make-a-Wish to get the computer and game (I forget which game he wanted) for him? He really deserves to have that wish come true if that’s something they will do for him.

kimmy gebhardt

I’m sorry that Gavin is having difficulties. It sounds so similar to the beginnings of dementia that older people face; I have a hard time seeing it in my older family and friends so I can’t even imagine what it’s like to see your child regress. I feel like the only saving grace in situations such as this are that the person losing their memory isn’t always completely aware of it. In Gavin’s case, he doesn’t seem to realize that he’s not your average 17 year old and enjoys his life as it is. On a related note, did you ever put together a proposal with Make-a-Wish to get the computer and game (I forget which game he wanted) for him? He really deserves to have that wish come true if that’s something they will do for him.

Rob Gorski

Thanks Kim. He’s blissfully ignorant. As far as the make a wish, he told us just the other day, he would like to go to Lego Land. He’d refused every idea until then. He has been too afraid to travel, and or leave home.

That was a hold up. We are going to try and get the ball rolling once again.

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