My kids with #Autism had their first real play date yesterday

We had a pretty awesome experience today, with our kids first real play date. In all our years, the kids have never had a real play date because play dates for kids with Autism isn't always easy, or ever easy. Without spending a great deal of time on this, I'll simply say that trying to find actual peers for kids with Autism can be an enormous challenge. Even if you do manage to find a peer, there are literally a million things that can go wrong. Putting two or more kids together with the many issues that can go along with an Autism diagnosis, can be a disaster. One example I can remember from the kids just interacting with classmates has to do with boundaries. Some kids with Autism have…

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#Autism Parenting: Some days are worse than others

We had a really challenging day. Rather, Emmett had a very challenging day, and subsequently, so did the rest of us.  Any parent would gladly take away their child's burden and shoulder it themselves, but when it comes to Autism, there's no possibility of that. No matter what we do, sometimes we just can't help him.  For me personally, this was an emotionally draining day because Emmett was completely out of sorts for most of it.  The main issue for the first part of the day was clothing related. He couldn't wear any shirt. There's one shirt that he can wear, and we can't find it. It's got a picture of a pug wearing sunglasses and headphones. It's nowhere to be found.  His other shirts are bothering his shoulders. He…

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As an #Autism parent, I never take these for granted 

It turns out that we're looking at another break today, and that's amazing. The boys will be going to Lizze's parents for the night, and we will get some time to ourselves.  This has been an unusual week in the sense that we're getting so much time off, but it's an absolute blessing.  Lizze and I have zero plans at this point, but that may or may not change. I'd really like to go for a nice long walk, but the weather is rather hit or miss today. We have storms in the forecast, and we'll have to see how things go.  The bottom line is this. We are incredibly grateful for the time off provided by both sides of our family. I know that not everyone gets breaks like…

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Does anyone know what guilt free sleep is? 

The boys left around lunch time and will be back around dinner time. Lizze has been hard at work on a class project, and I took a solid, three hour nap.  That's about the extent of our travels.  I can't explain how exhausting my daily life is. When I have a chance for some guilt free sleep, I take full advantage. Would it have been nice to do something? Of course it would have, but sometimes it's just not in the cards.   The level of exhaustion felt by an Autism parent is indescribable.  In many cases, sleep is a luxury we dont have, and neither is free time. When we do get a break, we have a choice. We can either gets some desperately needed sleep, or try and have…

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Why it’s ironic my kids are so loud

The boys are in rare form this morning. Emmett is refusing to wear clothes and Elliott won't stop talking. There is so much needless noise, and it's ironic because the loudest people in the house, are the ones who hate notice the most.  I would love to have some quiet but I don't think it's in the forecast.. 

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Understanding a devastating #meltdown from start to finish 

My goal with this post is to help you understand the meltdown process from start to finish. I'm hoping to reinforce that meltdowns are not behavioral problems. Meltdowns do not require discipline and aren't indicative or bad parenting or a bad child. I am using an example that happened in our lives recently, to help you better understand meltdowns.  We went to the grocery store in order for Emmett to pick out his birthday cake. It was a momentary lapse in judgment, and believe me, I paid the price for it. In truth, Lizze, Emmett, and I paid a price for it.  The store had tons of ice cream cakes, but the only white or yellow cakes had a graduation theme. The theme was only plastic decorations that could be…

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I’ve officially applied to Make A Wish for my son

At 2 am this morning, I was unable to sleep. I've got many things on my mind and I couldn't shutdown. One of those things weighing heavy was this whole Make-A-Wish thing for Gavin. I began the process after Gavin's immunologist suggested we apply last year. The process halted for a variety of reasons, but two reasons created the most friction. The first of which was Gavin didn't want to do anything. If he was unwilling to participate, there's no point in continuing. The second reason was more emotional on my part. Knowing your child qualifies for Make-A-Wish is a doubled edged sword. On the one hand, it's such an amazing opportunity for Gavin. On the other hand, he qualified in the first place. To qualify, things have to be serious about…

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