I’ve officially applied to Make A Wish for my son

At 2 am this morning, I was unable to sleep. I’ve got many things on my mind and I couldn’t shutdown. One of those things weighing heavy was this whole Make-A-Wish thing for Gavin.

I began the process after Gavin’s immunologist suggested we apply last year.

The process halted for a variety of reasons, but two reasons created the most friction.

The first of which was Gavin didn’t want to do anything. If he was unwilling to participate, there’s no point in continuing.



The second reason was more emotional on my part. Knowing your child qualifies for Make-A-Wish is a doubled edged sword. On the one hand, it’s such an amazing opportunity for Gavin. On the other hand, he qualified in the first place.

To qualify, things have to be serious about his health. Applying seemed to make that fact, so much more real, and accepting that is a bitter pill.



Having said that, Gavin has since changed his stance, and at last check, he wanted to go to Lego Land. He’s going to be 18 years old this January, and if we don’t act now, he may miss the opportunity altogether.

Last night, or rather very early this morning, I sent the information back to Make-A-Wish on Gavin’s behalf. It was a sobering moment for me as a father, but Gavin deserves this, I won’t be the reason he misses out.

Below is the information needed from me:

Dear Rob, 

Thank you for your inquiry into Make-A-Wish.  Our mission is to grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy. 

Make-A-Wish has specific medical guidelines and eligibility requirements. Our criteria states that it is not the disease or condition itself that qualifies the child, but the fact that, at the time of referral, the disease or condition has placed the child’s life in jeopardy.  We work individually with each child’s specialist to determine whether a child’s condition will qualify for a wish. Please discuss our eligibility requirements (below) with the child’s specialist (one they see on a regular basis for their life-threatening condition) before starting the referral process. 

Eligibility Requirements: 
1. The child must be between the age of 2 ½ and 18. (Must be referred prior to their 18th birthday) 
2. Currently have a life-threatening medical condition. 
3. Have not been previously granted a wish from Make-A-Wish or any other major wish granting organization. 

Once you have spoken with your child’s physician and they feel that your child’s condition meets our medical guidelines please respond with the following information: 
• Child’s name 
• Child’s DOB 
• Child’s medical conditions 
• Current life-threatening complications 
• Child’s treating physician and their location 
• Child’s parent/legal guardian name and contact number 

If you are not a family member or a medical professional, please be sure the child’s family is aware of your inquiry and provide the above information to the parents or guardians of the child. 

If the child’s condition does not look like he or she will meet this criterion, please let us know and we can provide a list of other organizations which may be able to assist. 

If you have questions, please feel free to contact our office at 877-206-9474

With sincerest regards, 

Read This  This week has been an adventure in #Autism and other things

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RacerxJaxThe Autism DadRob GorskiJenn K.Gina Surgeon Recent comment authors

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Francis
Guest

Good for you Rob. Which Legi land? I have contacts in winter Haven FL and might be able to provide… https://t.co/fkr1eMfuSE

RacerxJax
Guest

You are amazing Rob. Much love and hugs.

The Autism Dad
Guest

Thank you

Leigh Ann Reid
Guest

I hope Gavin gets his wish. Good luck with the process!

Alicia Trautwein
Guest

Gavin is very blessed to have a Daddy like you! As parents, we have to choose tpo do what is best for our children. Sometimes, it me and truly accepting reality so that we are able to give them the things they want and need. You are an amazing Dad to your kids! Sending you guys love and prayers!

Francis
Guest

Good for you Rob. Which Legi land? I have contacts in winter Haven FL and might be able to provide… https://t.co/fkr1eMfuSE

RacerxJax
Guest

You are amazing Rob. Much love and hugs.

The Autism Dad
Guest

Thank you

Leigh Ann Reid
Guest

I hope Gavin gets his wish. Good luck with the process!

Gina Surgeon
Guest

Prayers for you all. I hope @MakeAWish is able to respond quickly.

Alicia Trautwein
Guest

Gavin is very blessed to have a Daddy like you! As parents, we have to choose tpo do what is best for our children. Sometimes, it me and truly accepting reality so that we are able to give them the things they want and need. You are an amazing Dad to your kids! Sending you guys love and prayers!

Debbie Hawsman Tomor
Guest

I’m sorry I haven’t been more up to date on Gavin’s condition. I did not know it was getting to this point. If you need anything or if Liz needs to just talk she has my number!! Love you all! You and Liz are awesome to be doing this for Gavin!!

Jenn K.
Guest

I hope they grant your son his wish. Thank you for sharing with eloquence such a painful experience. That you are willing to give voice to what your family is going through is a gift to other families who might feel as if they are alone in their struggles, your courage is inspiring.

Gina Surgeon
Guest

Prayers for you all. I hope @MakeAWish is able to respond quickly.

Debbie Hawsman Tomor
Guest

I’m sorry I haven’t been more up to date on Gavin’s condition. I did not know it was getting to this point. If you need anything or if Liz needs to just talk she has my number!! Love you all! You and Liz are awesome to be doing this for Gavin!!

resistance bartender
Guest

I hope he gets his wish!

Jenn K.
Guest

I hope they grant your son his wish. Thank you for sharing with eloquence such a painful experience. That you are willing to give voice to what your family is going through is a gift to other families who might feel as if they are alone in their struggles, your courage is inspiring.

resistance bartender
Guest

I hope he gets his wish!

Rob Gorski
Admin
Rob Gorski

I don't agree with you. The word "retard" in no longer accepted. MRDD is now DD at least in the state of ohio. Someone calling an Autistic child "retarded" speaks to that persons LACK of intelligence. There are just some words that are derogatory. "Retard" is one of them. Until someone calls your child a "retards" them perhaps you can pretend it's ok. I'm sorry you seem to have given up on this but I won't. It's wrong and I stand up for what's right, regardless of the odds. No offense.
My recent post Autism- self-injury and “outside the box” thinking

Ungovernable1977
Guest
Ungovernable1977

Hey Rob… been looking into this, as I unfortunately have thown this word around for years, NOT in a way directed at anyone with ANY actual mental disorder, etc… but just 'thats retarded'… just as I use 'thats gay'… a sad lack of growing up, probably due to the sailor mouth friends I have kept all of us supposedly enlightened anarcho-punks… Anyways, I did some QUICK research, as a very logic-only minded friend said 'but aside from the slur, its a real term, both medically and otherwise'. So I looked it up, and yes, Medicine still uses it. The ironic… Read more »

Rob Gorski
Admin
Rob Gorski

Very well written and very intelligent response. Thanks a lot!!! 🙂

free
Guest
free

Hi Rob. Although I agree the word "retard" should not be used due to its etymology, I don't believe people use it due to their lack of intelligence. Many people use the word as a way to communicate because they have no other options. It is more of a lack of knowledge. (Unless they are using it to be hurtful)

Liz
Guest

I agree. Some people use it in order to communicate with others because that was the type of environment they grew up in.