There are times when I really hate being me. In order to do what's best for my kids, sometimes I have to cause them pain.  For the very first time in all the many years that Gavin has been receiving IVIG, he made a request of me that absolutely broke my heart. Before Gavin received his IVIG infusion tonight, he said this: Dad, when you put the needles in my belly today, can please make it not hurt...  Do you know how crushing that is to hear? 😢 I would do anything to not have to cause him this pain but it's causing this pain that keeps him alive... 

I confessed last night about how I'm not in the best of places. Today doesn't seem to be any different. Life in general is okay but I'm really struggling with Gavin.  When it comes to conversation skills, Gavin has three topics that he talks about: Food Video Games  His Super Best Friends It's not like it's on occasion, that I hear about this stuff.  It's as though he compulsively tells me about every thought that enters his mind. Those thoughts typically center around the above three topics.  I'm so grateful that he can speak. I'm grateful that he wishes to communicate with me. I'm even more grateful that he can communicate as well as he does. At the same time however, he's driving me crazy.  Yes, I know it's a…