Read more about the article Gavin’s not been feeling well lately
Gavin / General Medical Stuff

Gavin’s not been feeling well lately

Recently, Gavin's been complaining of stomach aches and nausea. Yesterday morning, he wouldn't even eat breakfast because of this.  Gavin is very motivated by food.  He plans his life around breakfast, lunch and dinner.  Anyone that knows Gavin would probably not even believe me if I said Gavin didn't want to eat breakfast.  I don't know what the deal is but it doesn't seem to be bathroom related.  It also tends to come and go.  He might feel sick for a little bit but then it goes away, only to return later.  It's weird and we'll have to keep an eye on this.  It probably wouldn't hurt to see the pediatrician for a check up anyway.   I will say that Gavin went to bed without any problems popping up.…

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August 30, 2016
Read more about the article We’re at the psychiatrist for Gavin and I’m terrified
Elliott / Emmett John / Gavin / My thoughts

We’re at the psychiatrist for Gavin and I’m terrified

We are finally at the psychiatrists office for all three boys.   Elliott is a simple meds check and refill, while Emmett's is in regards to a meds check, refill and sleep issues. Gavin on the other hand is a far different and much more complicated situation.   I'm sitting here sick to my stomach because I don't know what's going to happen.  We may not have any choice but to adjust his meds and that scares the shit out of me.   Thank God I'm not doing this alone anymore. Lizze and I are prepared to do whatever we have to in order to help Gavin.   I'm seriously shaking as I'm writing this because I'm terrified we have to increase his Clozapine. 

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August 29, 2016
Read more about the article OMG.. The incessant talking just sucks the life right out of me
Gavin / General Update / My thoughts

OMG.. The incessant talking just sucks the life right out of me

Please don't get me wrong when I say this, because I truly love Gavin and I wouldn't have done half the things I've already done, currently doing or will be doing in the future if I didn't. Gavin is driving me crazy. Yes, I'm very aware of how short that trip is but regardless, he's driving me there. When I write about him and what he's going through, it's meant to simply provide insight into our lives. At the same time, people have been following our story for nine years now and have grown to care about our lives and that absolutely includes Gavin as well.  I like to keep updates flowing whenever I can. That being said, I don't know how much more of Gavin's current emotional status I'm…

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August 29, 2016
Read more about the article Today’s been challenging, overwhelming, frustrating and heartbreaking, with a smidgen of awesome on the side
Gavin / My thoughts

Today’s been challenging, overwhelming, frustrating and heartbreaking, with a smidgen of awesome on the side

It's been a really interesting day here in The Autism Dad household. By interesting I mean challenging, overwhelming, frustrating and heartbreaking, with a smidgen of awesome on the side. The truth is that I was overwhelmed by my kids today, especially Gavin. Elliott and Emmett would get along for a little while and then fight over what amounted to misunderstanding or not wanting to deviate from their set way of doing things. We had front row seats to several meltdown today and while front row seats are usually a good thing, when it comes to meltdowns, not so much. lol The main story tonight revolves around Gavin once again. Gavin's in a place where he's telling us everything that pops into his head. This is almost compulsory because I don't…

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August 28, 2016
Read more about the article Gavin’s missions have taken a dark turn today and I’m at a loss
Gavin / Mission Debriefing / Psychotic Episode / Schizoaffective Disorder

Gavin’s missions have taken a dark turn today and I’m at a loss

Gavin sat Lizze and I down tonight to fill us in on some bad things that happened back at base today.  I'm going to be really honest and admit that after a little while, I shutdown. I listened to him go on and on for 25 minutes before I just couldn't take it anymore.  Self-preservation kicked in and I sorta went to my happy place.   He didn't know the difference and to him, I listened to every word he said. Apparently, Twilight Sparkle broke someone's arm today but it wasn't her fault because she was being controlled by King Modor (I think that's his name).   Long story short, Gavin and is group of super best friends, had to go track down the evil King and break his hold…

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August 26, 2016
Read more about the article Gavin’s Friday IVIG infusion is underway
Gavin / IVIG Infusion

Gavin’s Friday IVIG infusion is underway

Gavin's Friday IVIG infusion is well underway and so far, he seems to be doing just fine.   Typically, he will sit in the exact same place and do the exact same thing. Tonight is no different, as he's playing his tablet and constantly checking the needle sites to make sure that nothing is leaking.   This particular infusion is actually going pretty quick and he should be done sometime around 8pm tonight.   We're going to give him medication that will help to limit the issues he sometimes gets as a result of receiving foreign antibodies.   All should go just fine and within about an hour or so, he'll be fast asleep, recovering from this life saving procedure.  

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August 26, 2016
Read more about the article Gavin gets a special day today 
Gavin / My thoughts

Gavin gets a special day today 

Gavin is spending the day with my Mom. There's no big reason for it. It's just one of those just because things. Gavin loves hanging out with his Grandparents but most often, he's with his brothers.  This is giving Gavin a chance to just hang out without having to compete for attention because his younger brothers are sorta hogging all the attention.   I'm really happy that he's getting some one on one time because he deserves it...  ☺ 

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August 26, 2016
Read more about the article How many times can one father’s heart break? Too many. The answer is too many. 
Childhood Disintegrative Disorder / Gavin / My thoughts

How many times can one father’s heart break? Too many. The answer is too many. 

I don't feel really positive right now and that bothers me.  Unfortunately, the reality is that sometimes life just sucks. Life is unfair and cruel at times and it feels like Gavin has had a disproportionate amount come his way. Gavin's still hallucinating and frankly, things are getting worse. He's becoming very preoccupied with his visibly challenged group of super best friends and is spending less time in the reality that the rest of us live in. His friends are always coming with him now and he's involving them in his decision making. This morning he drew a picture of Twilight Sparkle's Midnight form. Twilight Sparkle is one of his visibly challenged super best friends. Before he drew her in this particular form (seen below), he told me that he…

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August 26, 2016