We had two close calls with Gavin’s meds this week



We’ve had two pretty significant issues this week, in regards to Gavin’s Clozapine and IVIG infusions.

I mentioned previously that there was a issue with Gavin’s Clozapine refill and that governing body that okays Gavin’s refills has decided to make his start over. That means bloodwork every Monday and only seven days worth of pills at a time.

Anyway, I had called the pharmacy on Tuesday morning to remind them to pull his lab results because he needed his refill before Wednesday. They assured me that it would be done and delivered that afternoon.

Unfortunately, they never showed up and I had to chase them done and make sure it was refilled immediately. They finally refilled it but because it took them so long, they weren’t able to deliver it like they were supposed to. I had to pack the kids up and head out the pharmacy, on the other side of town to pick it up.



It all worked out but it’s really frustrating when things like this happen.

As for Gavin’s IVIG infusion, his supplies were delivered eariler this week. Actually the were delivered on Tuesday. When doing his infusion on Monday, the pump was on its last leg and needed to be replaced. I called in Tuesday morning to order it and 8 was promised it would be here before Friday. Guess what? It’s Friday and it never showed up.

We had to rig up Gavin’s current pump in order for him to get his IVIG infusion done tonight. The good news is that we were able to pull it off without too much trouble.



I’ll call back on Monday when they’re open.

The IVIG supplies have to be delivered. There’s no other way to get them, so we are solely reliant on them to do what they say they’re going to do, when they say they’re going to do it. As for his regular meds, having them delivered is much more of a convenience and if I have to, I can go and pick them up.

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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