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Some creative ways of meeting my kids sensory needs

Some creative ways of meeting my kids sensory needs

I'm trying to find some creative ways to help meet my kids' many sensory needs. The idea is to find constructive ways to getting a sensory fix, without destroying our house. lol In the picture above, Emmett is running this rock wall, like it's an obstacle course. He loves it, and it seems to help him get what he needs. Unfortunately, he wants to continue increasing the difficulty level. The challenge for me is finding ways to do that without making things too dangerous. For now, this is working and it will buy me a little time... :-)

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June 4, 2017

Elliott / Emmett John / Gavin / My thoughts

We are facing a tough decision – What would you do?

Later on this afternoon, we are supposed to travel to Y-Town. We are having a big family cookout for my Grandma's birthday. We are all pretty excited about going, because it's been awhile since we've been able to visit. Unfortunately, we aren't sure whether or not we should go now. On Friday, Gavin puked while at his Grandma's house. He says he's fine now, but we have to go by his behavior, and not his words. He spent a large part of the day sleeping, and that's a bit odd. He's also running a mild fever as well. He did have his IVIG infusion on Friday night, and perhaps it's still his body reacting to that. The other possibility is that he's actually fighting something off. Next we have Mr.…

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June 4, 2017

Autonomic Disorder / Gavin / My thoughts

New concerns with Gavin’s health have us worried

We're heading into a rough weekend. I need to catch you up on a few things I didn't get around to yesterday. The most concerning issue at the moment is that Gavin wasn't feeling well while at his Grandma's house, and ended up vomiting. The question is whether or not he's actually sick. I tend to think he isn't sick, and here's why. Gavin will over-eat if he's not very closely monitored. I suspect that he ate too much and ended up with a tummy ache. Historically, if Gavin even thinks he's going to vomit, he'll get himself all worked up, and end up vomiting, even if he didn't need to. He gets it stuck in his head and inadvertently ends up making himself vomit. We've seen this countless times. …

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June 3, 2017

My thoughts

We had a heartbreaking start to the day

I received a call this morning from my Mother. It was really early and she was pretty upset. At some point this morning, a baby black squirrel was hit by a car. Of course, this little black squirrel didn't die, and it dragged itself up my parents driveway, squealing outside their door. My Dad was at work and so it became my job to go and help her with this injured fur baby, even on my only day to sleep in. lol Lizze and I got up, and headed over to help my Mom. When we got there, we were unprepared for what we would find. This poor thing had a broken back, and was paralyzed from what would amount to the waist down. It was so scared, and it…

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June 2, 2017

Read more about the article I’m fascinated by bees and love taking their pictures

I'm fascinated by bees and love taking their pictures Ever since I learned how vital a role bees play in human survival, I've been absolutely fascinated by them. Honey bees have been on a major decline, but I've been seeing a ton of them recently thays awesome. I took this picture at the Canton Garden Center, with my Samsung S8+... Someday, I'd love to have a really nice camera, and maybe take some classes..

My thoughts / Photography

I’m fascinated by bees and love taking their pictures

Ever since I learned how vital a role bees play in human survival, I've been absolutely fascinated by them. Honey bees have been on a major decline, but I've been seeing a ton of them recently thays awesome. I took this picture at the Canton Garden Center, with my Samsung S8+... Someday, I'd love to have a really nice camera, and maybe take some classes..

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June 1, 2017

Cleveland Clinic / General Update / Lizze / My thoughts

There’s a lot to process after her appointment today

We just got home from our trip to the Cleveland Clinic. The kids are picked up and ready to go to Lizze's parents for the night. Lizze and I are both exhausted, and looking forward to a nap when the boys leave. As far as Lizze's appointment goes, there are some major changes she has to make to her life. Most of those changes are dietary, but she's also permanently placed on a low dose antibiotic. She's got a great deal to process right now and will probably share all the details on her blog, when she's ready. If not, I'll be sure to keep you updated as best I can.

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June 1, 2017

Cleveland Clinic / Lizze / My thoughts

Waiting for answers at the @clevelandclinic

Lizze and I made it to Cleveland, with a bit of time to spare. We did that despite some asshole almost crashing into us as he tried to pass us on the single lane in ramp. Aside from that, traffic wasn't too bad, and we had a nice conversation. I'm waiting for Lizze to get out of her appointment. We're hoping that we can manage her nausea, at the very least. There's no cure for gastroparesis, and according to the gastric empty study she had done, roughly fifty percent of what she eats, remains in her stomach, long after her stomach should have emptied. It's classified as severe. There's no life threatening anything involved here, but quality of life is severely impacted.

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June 1, 2017

Cleveland Clinic / Lizze / My thoughts

The important reason we are heading to the @clevelandclinic today

The reason we are going to the Cleveland Clinic today, is so that Lizze can see her gastroenterologist. This is a belated follow-up appointment, in regards to being diagnosed with gastroparesis. Gastroparesis is basically a slow stomach. That means food stays in her stomach for much longer than it should, and causes a number of problems. This is why Lizze is nauseous all the time. We're hoping to find some treatments that help her to get some relief. Unfortunately, there's no cure for this and treatment is limited to diet changes, but there are some medication options. Lizze will probably put more information on her blog, and you can find that here.

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June 1, 2017