Life is really getting me down today

I'm feeling incredibly overwhelmed on this fine, sunny morning. There are problems that I'm frustrated with and find myself unable to address on my own. I certainly can't afford to have them professionally solved either. Right now, the biggest is the squirrels living in my attic. I need to evict them and I want to do so in a humane way, but at the end of the day, I need them gone. They are getting in through a hole in the gutterboard on the third floor. When we had our roof replaced about ten years ago, they never replaced the rotted gutterboard and we didn't know because it's concealed behind the gutters. My Dad and brothers are happy to help me pull the gutter down, patch the hole and put…

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I’m forgiving myself tonight

We had a pretty decent day. I'm feeling a little burned out. Actually, I'm feeling a lot burned out. I'm having a hard fine writing today because it feels incredibly overwhelming. I'm going to accept that I'm not going to write like I want to today, forgive myself and start over tomorrow. More often than not, I beat myself up for these things because if I don't write, I can't generate revenue to provide for my family. I've learned over time that beating myself up only serves to make things worse for me. Instead, I'm going to try again tomorrow.

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The best news we’ve had in a month

I received a call from Akron Children's Home Health, the pharmacy we get Gavin's IVIG infusion medication and supplies from. Everything is set and Gavin should have his new medication on Thursday morning. There was a slight delay because apparently, there were special contracts that needed to be signed in order for them to even carry the new medication. We also have a bit of trial and error ahead of us as well. They are sending out the tubing they believe is correct for Gavin's IVIG infusion. The medication is supposed to be infused over a certain period of time. The pharmacist wants to get things down to about sixty minutes per infusion. If the tubing works as expected, they will send out more. If it doesn't, we will try…

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Gavin’s surgery is now uncertain

Gavin's supposed to have an endoscopy and a colonoscopy done at Akron Children's Hospital next week. They consider this surgery and refer to it as such, so I'm doing the same. I received a phone call this morning from his Gastroenterologist. This is the doctor who ordered the non-urgent but medically necessary procedures. As a result of Gavin's recent issues surrounding his IVIG infusions, he now will need medically cleared in order to proceed. They need his immunologist to sign off on the procedures and unfortunately, she won't be back in the office until Monday and we may need to make an appointment for him to get checked out. That may be cutting things a bit close. Assuming that Gavin's IVIG infusion medication shows up this week, he should be…

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This 1 single decision, turned our entire day around for the better

On multiple levels, it's been an absolutely exhausting day. I found myself dealing with a great deal of frustration all morning. I spent hours on the phone trying to get Gavin's IVIG infusion medication situation resolved and it seems like it's been resolved. See: We finally figured out why Gavin has NOT been able to get his life saving medication and you won’t believe the reason By the time I got through all that stuff, I was heading down a path of anger and I really didn't want to go there. Getting everything resolved was a very good thing but it's been an exhausting, scary and frustrating process. It just all came to a head this morning and I became angry because Gavin had to go through all of this.…

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It’s a bad day but this is how we’re going to move forward

I'm desperately trying to change the course of our day for the better. The boys want to go back to Quail Hollow and go hiking today. I don't exactly feel up to doing that and I know Lizze is still a bit under the weather. Having said that, it's a very positive activity and it gets them away from their tablets. They may take them with us for the sole purpose of taking pictures, and I'm okay with that. If we do end up going, I think we'll take Ruby with us. She'd have a great time and that's something we couldn't easily do with Maggie. She was way too big to load in the car and people don't always react well to pits. This will help to make a…

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We finally figured out why Gavin has NOT been able to get his life saving medication and you won’t believe the reason

I've just spent the last three hours on the phone, bouncing between Gavin's doctor, the specialty pharmacy and insurance. I swear to God, if I had hair, it would be all over the floor right now. After three fricking frustrating and grueling weeks, we've finally gotten to the bottom of why Gavin's infusion medications are still not available. I'm going to skip the nightmarish phone calls and the fact that Gavin's doctor and her entire office is gone for the whole week, without an on call person, according to the answering service. Instead, I'm going to simply explain what caused this giant cluster fuck and it is/was a giant cluster fuck. I just got off the phone after speaking to a very determined person with Gavin's insurance provider.. We couldn't…

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My #1 hope for this week

In a continued effort to remain positive in an otherwise less than positive situation, I thought I would approach this post a little differently. Rather than focus on what hasn't happened, I'm going to focus on what I hope to see happen. Maybe this is semantics but I feel like it's a more positive take and I'm going to roll with it. There are a couple of things I hope will happen this week. Generally speaking, I'd like to find inexpensive ways to keep my family active, and exploring what Mother Nature has to offer. I'm really pushing for a healthier lifestyle and trying to do that with our current set of limitations, can prove to be tricky but not impossible. My number one hope for this we is that…

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