I haven’t felt this bad in awhile 

It's been awhile since we've had so many of us sick at once. So far it's still just Elliott, Emmett and myself. Lizze is still avoiding the bug and thankfully, so is Gavin.  Personally, I haven't felt this bad in awhile.  I'm hoping to write more later but for now, this is all I have the energy to do. 

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Counting my blessings 

Last night was the longest night in a long time.  I only slept for about an hour and I'm feeling so much worse than I did last night.  I feel like crap and I'm definitely getting worse.  So far Gavin's still doing well and that in and of itself is something worth celebrating. The last thing in the world that we need is for him to get sick.. For now I'm going to count my blessings and survive this... 

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General Update: The Good News and The Bad News

I'll begin this entry by sharing that Lizze and I spent the afternoon together. It was really nice to have some time to ourselves. We had a great lunch and got some Christmas things done.  While we were out, Gavin spent some time with my Mom and had a blast.  Unfortunately, that's where the good news end and the bad news begins. As of the time of writing (12:30am 12/02/16), four of the five of us are getting sick. Gavin's the only one without any symptoms and that's likely the result of his twice a week IVIG infusions.  The rest of us are in various stages of getting sick with Elliott by far the worst.  We're all impacted by this in different ways.Emmett is dealing with a bad headache, while…

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One by one we all fall down

The boys went to school this morning but ended up still not feeling well and the school called for us to pick them up early from the after-school program.   Emmett has a headache and Elliott's throat is sore. Both boys look unwell and frankly, my throat hurts badly as well. The only ones not showing signs of being sick are Lizze and Gavin.  We've already decided to just keep them home tomorrow because they clearly aren't doing so well.  I think it will be a pajama day and everyone will just rest and get better.   There's apparently something going around the school and we hit the jackpot twice...  Yay us....

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I think we have a good day on our hands :) 

It was a really rough night for me but Lizze took care of everything this morning and sent me to bed.  Both the boys made it to school. We weren't sure how that was going to play out.  We were supposed to be in Cleveland but Lizze rescheduled it because I was too exhausted to make the drive.   I'm feeling much better and Gavin is at Grandma's, so we're going to try and take care of any Christmas shopping that we can, while we can.   While we're on a mission, this will also be like having time to ourselves.  I'm feeling really positive about today.... ☺ 

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It’s 3am and I’m up with a sick kid

Elliott came into our room about 3am because he wasn't feeling well. He's getting whatever Emmett had and has so much drainage that he feels like he's going to puke.  We're currently camping out on the couches in the living room because he can sit up and try to sleep more comfortably.  I don't know why this means for today because Lizze and I are supposed to be at the Cleveland Clinic mid morning...   Hopefully, Elliott will feel better in a few hours... 

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The letter I sent to my son’s teacher about him being bullied at school

In the ongoing issue of Elliott being bullied by a kid in his class, I sent the below message to his teachers after learning that these things are still happening.   I have great respect for these teachers and I know their job is not easy. At the same time, it's their responsibility to ensure the safety and wellbeing of those in their care.  I've spoken to the school several times about this issue and it remains a problem. I wanted to make myself heard and ensure that I got my point across without losing my cool...  I don't understand why they have to witness something they know is happening, in order to do anything meaningful about it....  I'm disturbed to learn that xxxxxxx is still a problem.  Elliott says…

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Applying for Make-A-Wish is breaking my heart

I'm feeling a great deal of mixed emotions tonight as I write this entry. Lizze and I finally sat down today and began the application process to have Gavin get a wish granted by the Make-A-Wish Foundation.  One of Gavin's specialists have been encouraging me to do this but I hadn't until today.  During the separation, things were really hard and I was struggling to keep the boys above water. When Lizze moved back home, we began putting our lives back together and I still hadn't applied.  The truth is that I was struggling with the idea of this whole thing because for Gavin to qualify, it means that things are pretty bad for him. It forces me to face his mortality and that's something I really struggle with.  Below…

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