Sometimes we have to stop and reevaluate the direction we’re going in



One of the things I’ve shied away from since beginning my new life as a single Dad, is the brutal honesty that once filled the words on these pages.  When I made the change to The Autism Dad from Lost and Tired, my goal was to tell a new story about our new lives.

Somehow along the way, I got into a rut and just haven’t found the words to dig myself out. 



Going forward, I plan on returning to the sometimes uncomfortable truth about my life raising 3 boys with Autism. 

That’s not to say I haven’t been honest until now because I have.  It’s just that I shied away from the some of the things I should have been sharing because my confidence had recently been shaken and I just wasn’t in a place to write that way..

One of the reasons so many people followed me was because of that honesty and transparency.  It helped them to realize that they weren’t alone in their struggles and that someone out there understands.

Writing the two pieces on Autism Awareness month felt so good and that helped me to realize where some of my stumbling blocks were. 

Going forward, if reading about the very real struggles of an Autism family makes you uncomfortable, simply don’t read it…. ☺

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8 Comments on "Sometimes we have to stop and reevaluate the direction we’re going in"

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Kim Gebhardt
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Regarding your posts on Autism Awareness month, what exactly do you want to see change? You’ve laid out why you don’t particularly care for Autism Speaks, but it’s because of organizations like them that people are more aware of autism and what it is, and because of that, your kids have more help and benefits than they would have 30 years ago. Schools to teach special needs kids and give them IEPs weren’t around. Your kids would have simply been in public school and been labeled ‘the bad kids’ or ‘the shy kids’ or ‘the weird kids’ or ‘the stupid… Read more »
Kim Gebhardt
Guest
But they do help families, just not by handing checks to individuals. What they do is grant money to programs which in turn help individuals/families. You mentioned in another reply that Autism Speaks spends most of their money paying inflated salaries. Well, I looked at their financials and that’s simply not true. In 2014 they raised $57 million and had an admin fee of 5.1%. Do you realize how low that percentage is? Komen is almost double that. I run a non-profit and my admin fee is 5.5%, and my salary takes up about 40% of that. 5.1% is outstanding,… Read more »
Rob Gorski
Guest

Here's a question… What are the pros and cons to Autism Speaks? There's so much controversy surrounding them and…

Posted by The Autism Dad on Sunday, April 3, 2016

Check it out and you’ll see the general feeling towards them.. ☺

Kim Gebhardt
Guest
I understand the feeling towards them and I even understand why some may feel as they do, but I don’t think they’re quite the monsters people make them out to be. Question: I know you love your kids and say you wouldn’t change them for anything, but if you could take away even one of Gavin’s disorders and give him a better and more independent life, wouldn’t you do it? How about if you could wipe Elliott’s anxiety away or take away Emmett’s sensory issues? Would you do that? I see people comparing AS to Nazi Germany and thinking that… Read more »
Jimmy Rock
Guest
Kim, for all the good it has done, AS has historically had a very disturbing attitude towards autistic individuals. Considering it is the most influential and well known organization of its kind, there has existed a bizarre disconnect between it and the community it represents. Recent changes in their leadership and recent appointments of 2 autistic individuals to their executive board, as well as the resignation of their longtime chairman of the board (and new appointment) is hopefully a positive sign. I could really delve into this but people who are far more articulate than me, many of whom are… Read more »
Rob Gorski
Guest

Very well said. Kim, that’s what I was trying to get at but my brain isn’t firing on all cylinders today…

Thanks Jimmy… Very, very well said…. ☺

Kim Gebhardt
Guest
Hi Jimmy, sorry for the super delayed reply but life got in the way last night. 🙂 I hear all that you’re saying and I think on the surface, having autistic people on the Board makes perfect sense. However, when you scratch the surface and look at the rules and regulations of the non-profit world, it’s not quite that easy. I run a non-profit. I cannot add or subtract ANYONE from my Board without meetings and Board approvals and resolutions and a host of other criteria. Secondly, I cannot have anyone on my Board who may benefit from the services… Read more »
Jimmy Rock
Guest
Kim, i appreciate your knowledge of the mechanics of non-profits but this isn’t about the rigors of board appointments. My post referenced the fact that previously appointed autistics to the AS board had resigned because of the organization’s philosophies. I also expressed optimism because of their recent appointments of autistics to their board (including Stephen Shore- look him up) the resignation of their chairman, and other executive moves. Not sure why you thought I was suggesting that AS simply needed to “put someone on the Board”. The problems that AS has have nothing to do with potential conflicts of interest… Read more »
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