I want to take a moment and say Thank You

It's important to me that you all know how much I truly appreciate your support. Support comes in all different shapes and sizes but it all helps.  Thank you all so much for continuing to follow our journey. Thank you all for supporting my mission and my efforts to help the world better understand what Autism Parenting can be like.   Everytime a post gets Liked, Retweeted, +1 or shared in some other fashion, it helps me reach more families that are struggling. It helps me to educate the world about what Autism can be like in real life and that has already proven to make a difference.  As a result of your support, there are people out there that are more understanding and compassionate towards people with Autism and their…

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I’ve been running on fumes since last night

Today was one of those days where I was completely drained at the onset. Gavin's mission debriefing really took a great deal more out of me last night than I originally thought.  After getting the boys to school, I crashed for a little while. I was even too tired to get my walk in this morning.  I feel a little better now but Lizze is leaving for class which means Gavin has to come with me to pick up the boys. He's already trying to fill me in on a nightmare that Twilight Sparkle had last night or something like that anyway.  It feels like there's no escape from this... I know that sounds terrible but it's the reality of how I'm feeling right now. Gavin has asked me to…

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Sometimes it’s difficult to remain positive but this is what I do to prove it’s not impossible 

I'm going to bed tonight with mindset that when I wake up, the slate will be wiped clean. I'm going into the new day with a sense of I can totally do this.  It doesn't matter how positive a person is because when faced with the unending challenges associated with being an Autism parent, it can become difficult to remain positive.  That said, being difficult and being impossible are two very different things. While it may be difficult to focus on the positive, it's certainly not impossible. I feel pretty comfortable saying that because we have more than our fair share of challenge, heartache and pain.  I find that there's always something worth celebrating, at least on most days.  I'm really trying to focus on the positive and as a…

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Unfortunately, Gavin isn’t getting better and tonight’s appointment is proof of that

We met with Dr. Pattie tonight and one of the main topics was Gavin. He's officially been back on 800mg per day of Clozapine for 48 hours. While we haven't seen any improvements, we continue to see his side effects becoming more significant.   Gavin had been waiting all day to tell the three of us about his latest missions.  When it was time for him to share, he just unloaded on us.  He talked pretty much nonstop for over 20 minutes.   His adventures were more of the same. He's the indispensable hero that sees all and knows all. He uses his power to smite evil (I've been watching Supernatural, so that's my word not his) and reign over his Universe.  He told us about how he can glue…

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Today’s Victory: Fantastic News About Emmett

In the spirit of trying to remain focused on the positive, I have some really good news to share this afternoon.  While at Akron Children's Hospital this afternoon for Gavin's Speech Therapy, I inquired about Emmett's return to Occupational Therapy. The news I received was a really positive boost to my afternoon.  Emmett's therapist has returned from maternity leave and today was her first day back.   We sat down and discussed what would be best for Emmett. Basically, we're going to stick to the same schedule and time slot. Rather than every other Tuesday though, we're moving to the first and third Tuesday of each month. Akron Children's Hospital as a whole is moving to this to avoid months with a fifth week from throwing everything off.   Emmett…

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I’m really struggling with Gavin today

I confessed last night about how I'm not in the best of places. Today doesn't seem to be any different. Life in general is okay but I'm really struggling with Gavin.  When it comes to conversation skills, Gavin has three topics that he talks about: Food Video Games  His Super Best Friends It's not like it's on occasion, that I hear about this stuff.  It's as though he compulsively tells me about every thought that enters his mind. Those thoughts typically center around the above three topics.  I'm so grateful that he can speak. I'm grateful that he wishes to communicate with me. I'm even more grateful that he can communicate as well as he does. At the same time however, he's driving me crazy.  Yes, I know it's a…

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