Has anyone faced this bizarre #sensory processing issue before?  – Page 2

Has anyone faced this bizarre #sensory processing issue before? 


Yesterday alone, we discovered that he would no longer eat hamburgers. We always buy the same brand and cook them the same way, however, yesterday he discovered that they no longer taste right. He won’t eat them anymore.

We cooked pasta for dinner last night. The pasta was perfectly cooked, and he eats it with butter and salt. This time, however, it didn’t taste right. He won’t eat it anymore.

Kids with Autism often generalize things in life. If something tastes bad this time, it’s always going to taste bad. This is the way Emmett is wired, and we’ve had very limited luck in regards to helping him work through these types of problems.

Tonight we had a massive meltdown because Emmett was hungry, but nothing tasted right, and despite our exhaustive efforts, he would eat very little.

Having Emmett no longer eat something isn’t unheard of. What’s different about this is that everything tastes funny. 

My current theory has to do with this being a new symptom of his fever disorder. We’re pretty sure that he began a flare a few days ago. We also know that his SED rate is almost twice what it should be, indicating something is wrong.

To make matters even more difficult, our grocery budget has been slashed, and it was already inadequate for what we needed.

I’m not sure what’s going on, but he was just at the doctors and has a clean bill of health. He’s not stuffy or dealing with head or sinus congestion either. Sometimes that can impact the way things taste.

This is one of the things that’s popped up recently, and I haven’t had the energy to write about.

I’m unsure of how this is going to play out, or if this is a temporary problem. We’ve never experienced a situation where he no longer tolerates this many foods at one time, at least in regards to foods that he eats religiously.

I’m not going to lie. I’m concerned about this because I’m not sure what we’re going to do…

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Pamela Rundall Mari

Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.

Gwen Jorgensen

I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w

C

Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?

Leigh Forbes

@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!

Vanessa

My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK

Leigh Forbes

@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228

Tara Dresbach

Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s

Pamela Rundall Mari

Sed rate doubled. I don’t think its sensory. Even though doc said all ok I’ll bet he’s brewing something making him have a bad taste in his mouth it’s not the foods themselves. Only because it’s spread over multiple foods.

Rob Gorski

Here’s the thing. Emmett has a rare fever disorder called PFAPA. Traditionally, he’d run a high grade fever for about 10 days but not actually be sick. He had surgery when he was younger to try and help with this debilitating condition. The high grade fevers were reduced but new symptoms emerged.

Now he breaks out in painful mouth sores, inflamed joints and major mood swings.

Every once in awhile, his symptoms shift and new symptoms arise.

You may be absolutely correct in your assertion but I suspect the thing brewing, is a new symptom of his fever cycles.

Leigh Forbes

@AspieMum Could it be he’s going through a hormone phase? My son goes off foods he’s eaten for year… https://t.co/vSL2YiE228

Rob Gorski

It’s entirely possible but to my knowledge, nothing like that has happened…

Leigh Forbes

@AspieMum 2/2 The ingredients haven’t changed, so he must have! That’s all I can think of!

C

Has he changed his meds? Is he brushing his teeth before meals? Could there be subtle ingredient changes in what you’re buying for him?

Rob Gorski

His meds haven’t changed in a long time and while there may be more subtle things I’m not aware of, he’s not brushing his teeth before eating…

Rob Gorski

The food itself hasn’t changed as well..

Vanessa

My boys are very sensitive to the texture of foods especially my oldest who is also very sensitive… https://t.co/dBIjdAM3MK

Rob Gorski

I can absolutely relate to this. We struggle with the same thing.

Gwen Jorgensen

I do know that change in meds, or long viruses, or high fever sometimes rerouted food likes & disli… https://t.co/bHPWSzbl9w

Tara Dresbach

Yeah. Long colds, prolonged allergy seasons, and long fevers have done it. Hormonal shifts have mad… https://t.co/5rRFF19X9s

Rob Gorski

Thanks Tara. That’s what I was thinking as well.

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