Sometimes it’s hard to keep moving forward

Sometimes it’s really hard to find the strength to pick up and continue moving forward. There are days when the idea of continuing to keep moving ahead, is so completely overwhelming. 

Poor Emmett has now gone almost two days without being able to tolerate a shirt. This is a newer thing for us, because we’re used to the big issue being shoes, socks, and pants. Shirts have never really been a significant issues in regards to school. 

Unfortunately, the last two days have presented us with an obstacle that we were unable to overcome. 

Missing school is not something we take lightly, but neither are Emmett’s Autism related struggles. We have to balance compassion and societal demands. 

We all know that kids have a long sorted history of wanting to get out of going to school. In Emmett’s case however, this couldn’t be farther from the truth. He desperately wants to be there, and sometimes he can work through these sensory obstacles, but other times he can’t. 

Today was a really fun day at school. Emmett looks forward to these days all month long and was so excited to get up this morning. I think he had planned in being able to better tolerate his clothes, but he quickly learned that wasn’t the case. 

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20 Comments on "Sometimes it’s hard to keep moving forward"

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Jimmy Rock
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Jimmy Rock
Sorry that he’s experiencing this. I’m sure you must get at least a little exasperated when people give you all sorts of suggestions which demonstrate that they have no comprehension of what’s going on, are painfully obvious that of course you already tried them, or are somehow insulting because they minimize the situation. I’m going to forge ahead anyway 🙂 You talk a lot about all the efforts you make with him to work through it together. How much time to you give him to work though it himself, alone, outside of your presence? You’ve mentioned that he feels like… Read more »
Mindfulmon
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Mindfulmon

I think it becomes a catch 22…poor guy. The more he tries the more energy he uses and then the symptoms are harder to manage causing more stress. I think sometimes as a parent you just have to say OK we are done for now we can try later. Sorry…it is hard to see your child struggle.

reBECCA
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reBECCA
I wish I had a suggestion for you, but it sounds honestly like a bad case of a kid having nerve pain and sensitivity, actually. Has the doctor checked levels of things like magnesium, calcium, B12 and B6, folic acid? Deficiencies in these areas can contribute to nervous system dysfunction, also zinc or copper being too high or too low (according to our Neuro)- my spectrum kid had low copper. You might want to try putting him on one of those special multivitamins for those on the spectrum- they will have good doses of the B vitamins in methylated forms,… Read more »
Jimmy Rock
Guest
Jimmy Rock
Sorry that he’s experiencing this. I’m sure you must get at least a little exasperated when people give you all sorts of suggestions which demonstrate that they have no comprehension of what’s going on, are painfully obvious that of course you already tried them, or are somehow insulting because they minimize the situation. I’m going to forge ahead anyway 🙂 You talk a lot about all the efforts you make with him to work through it together. How much time to you give him to work though it himself, alone, outside of your presence? You’ve mentioned that he feels like… Read more »
Mindfulmon
Guest
Mindfulmon

I think it becomes a catch 22…poor guy. The more he tries the more energy he uses and then the symptoms are harder to manage causing more stress. I think sometimes as a parent you just have to say OK we are done for now we can try later. Sorry…it is hard to see your child struggle.

BeckyW
Member
BeckyW

Can you turn a shirt inside out and see how it feels? Now, maybe this is stupid but if it’s the seams they wouldn’t bother him if they were on the outside. Maybe he would get picked on at school. But I’ve accidentally put on shirts inside out and no one noticed!

BeckyW
Member
BeckyW

And I am sensitive to wool and other scratchy fabrics. Maybe he could wear one kind of fabric over another.

reBECCA
Guest
reBECCA
I wish I had a suggestion for you, but it sounds honestly like a bad case of a kid having nerve pain and sensitivity, actually. Has the doctor checked levels of things like magnesium, calcium, B12 and B6, folic acid? Deficiencies in these areas can contribute to nervous system dysfunction, also zinc or copper being too high or too low (according to our Neuro)- my spectrum kid had low copper. You might want to try putting him on one of those special multivitamins for those on the spectrum- they will have good doses of the B vitamins in methylated forms,… Read more »
BeckyW
Member
BeckyW

Can you turn a shirt inside out and see how it feels? Now, maybe this is stupid but if it’s the seams they wouldn’t bother him if they were on the outside. Maybe he would get picked on at school. But I’ve accidentally put on shirts inside out and no one noticed!

BeckyW
Member
BeckyW

And I am sensitive to wool and other scratchy fabrics. Maybe he could wear one kind of fabric over another.