Why are #Autism parents Judged so Harshly? (S1E5)

If you're an Autism or Special Needs parent, you are probably all too aware of what it feels like to be judged by those around you. My wife and I are no exceptions. I know how bad it feels to be judged and I see how badly others are impacted by this as well. Because this impacts so many people, I wanted to devote an episode to talk about judgment. It's so important to help people understand how their words and actions can impact others. Give this a listen and then pass it along to someone who could use the insight or would benefit from being reminded that they aren't alone.. ☺

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Why it’s so hard to cook for my #Autism family

Good morning folks. ☺ Last night before bed, I decided to do something this morning that I haven't done in a long time time. I know this is going to sound weird but I haven't cooked a family breakfast in I can't tell you how long. Sounds terrible doesn't it? Honestly, yes and no. The reality is that I love cooking. I love cooking for my family. That's not the issue here. The problem has been that my family is very, very, very difficult to cook for because of all the sensory related food issues. I used to try and cook three meals a day but it became too much. It wasn't just cooking three meals, it often meant cooking a unique meal for each person in the house, three…

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Just a super quick note

So, I'm sorry that I've been absent from here recently or at least not writing as much as I normally do. I'm spread so thin right now and I'm having to puts some things down. I wanted to quickly post an update because Gavin is heading back to Akron Children's Hospital this morning. This is a follow-up with his gastro. He's having some problems and I need to try and find him some help. Lizze and I will have to divide and conquer today because she's has to not only be somewhere else during Gavin's appointment but she's also making sure the kids get picked up from school. I'm not feeling super enthusiastic about today but we need to get through it. I wish you all the best today and…

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Where’s the volume control?

I love my family. I know things are challenging and I can find myself overwhelmed and frustrated but I truly adore my family. Aside from improving our quality of life and safety, I wouldn't change my life for anything in the world. I don't know why I always feel compelled to say that prior to discussing something that I find frustrating but I do. Anyway, having said that, it was rough day. Lizze is in a great deal of pain and her head was pretty much left her incapacitated. On Tuesday, I gave her the second injection of Aimovig, her new migraine preventative. While it hasn't helped yet and we don't expect it to for a three or four months, for a few days after the injection, her migraine gets…

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This was expected

I went to bed last night, knowing that this would be a possibility and after not sleeping well at all, I was quite grateful when the early morning call came to confirm it was a snowday. We got a snow/ice storm late last night and early this morning. It was apparently bad enough to cause the schools to shut down. I was able to go back to sleep for a little while and wake up feeling a little more rested. We have Dr. Pattie tonight and I have a conference call in a bit in regards to someone wanting to be interviewed on the podcast. While we're on that subject, I'm actually getting requests from people and/or organizations that want to come on and talk about what they're doing for…

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Can anyone relate?

Sometimes life is so overwhelming and being an Autism parent is the least stressful part of it. I'm wondering if anyone can relate to how I'm feeling right now?

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Sensory processing issues get in the way again

Trying to get the kids ready for school can be like herding cats at times. There are a million reasons for that. Sometimes it's pretty kid typical and just not wanting to get out of bed, or simply dragging their feet while getting ready. Other times it can be more Autism related in nature. This morning was delayed by sensory issues once again. Mr. Emmett was having issues with his sock on his left foot. It took quite some time to help him work through it. He kept saying that it felt like something was snagging his sock. He was getting really upset because he didn't want to be late but he was simply unable to put his socks on. He didn't wear socks to school for many years but…

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We could all use the break

We're finally getting back into our routine after last week and the long weekend. It's been fun for the boys but it's also been chaos for them because they thrive in their routine, as do most Autistic people. The rest of the week is going to be a sorta slow. We have all of our normal weekly appointments plus one out of town trip for Gavin. He needs to get to Akron Children's Hospital to see his gastro. It's mostly a follow-up but we would be getting him in anyway because he's having some digestive related issues. Outside of that, it's going be a bit less chaotic than last week and that's a good thing. My focus for this week is getting Friday's podcast episode done, walking and continuing my…

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