Here’s a general update for today

The boys are off today for some weird reason, making it a three day weekend.  Gavin will be getting blood drawn for two reasons today. The first is for his Clozapine. They're looking at his white blood cell count. The second is related to his immunoglobulins. This is looking at his specific levels to find out if we need to adjust his IVIG dosage.  After the bloodwork, we need to hit the post office and grocery store.  We're pretty much out of everything the boys will eat and its been a tough last couple of days. Thankfully, I can go shopping today and hopefully stay within a modest budget, while getting the things the boys will actually eat.  I'm really tired but I'm also feeling like I'm in a good place…

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Sensory issues kept Emmett home from school today

It's going to be hard to chalk today up to a win because for the most part, it's been a disaster. Lizze had a really hard time sleeping last night, which meant I had a really hard time sleeping last night.  It was one of those nights where bad dreams really created havoc.  We ended up oversleeping a little bit this morning and the tone for the day was set.  Elliott did an amazing job of getting dressed and ready to go this morning. That stood in strong contrast to what it was like with Mr. Emmett.  Emmett ended up not going to school today because he wasn't able to tolerate clothes on his skin at all. It's like he woke up more hypersensitive than normal. That being said, this…

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It’s important to find the humor in life or else you’ll go nuts. This is especially true for #Autism parents

I try to find the humor in everything. It's just how I cope and it's not always easy but it's something that truly believe is worth the effort.  ☺  I want to share a picture because this is one situation that I find humor in because it's so classic and innocent. If you have a child with Autism and/or sensory processing issues, you probably won't need an explanation for what you see..  This is what I find in random places around the house, shortly after Emmett arrives home from school.  It's totally a sensory thing and has to do with not being able to tolerate clothes on his skin. The moment he gets home from school, his shoes and socks are off his feet and on the floor.  On the…

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A major update about Gavin’s health and where we go from here

Today was really rough for Mr. Gavin. He can't ride in the car for very long at all, without feeling like he's going to have an accident. This is the worst it's ever been, by a long shot. I was able to get ahold of his prescribing doctor and we are to immediately drop him down to his previous dose, beginning Thursday (tomorrow) morning. This means we are back down to 600mg of Clozapine a day. We aren't going to stay there though. After running 600mg for seven days, we will begin to increase by 50mg per week for the next four weeks. The idea behind this is that perhaps if we bring him back down and then slowly bring him back up, the side effects might not be so…

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