Gavin / Mission Debriefing / My thoughts / Schizoaffective Disorder

Should I be worried or proud?

Gavin and I were playing Minecraft tonight before he went to bed and this was the conversation we had about his latest mission today. This mission debriefing was a little concerning and a bit on the creepy side. Perhaps not listening to this with the kids in the room would be a better idea this time. The context of this mission involved someone in Gavin's world being murdered. Gavin was outraged by this act of violence and took it upon himself to return the favor as he put it. I don't know how to feel about this because the fact that he would want to murder someone, even in his world, is concerning. I worry about his thought process there but at the same time, when you hear what he ended up doing…

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November 21, 2016
Read more about the article How my son totally impressed me today
Gavin / My thoughts

How my son totally impressed me today

After picking Elliott up from school today, Gavin and I took him with us to the grocery store.   Elliott totally surprised me with how well behaved he was, so kudos to him. Gavin on the other hand, did something for the very first time.  We haven't been grocery shopping for a little while so today was a big trip. After bagging everything, one cart became two carts worth of groceries.   Considering I'm only one person, I had to rely on Gavin to push one of the carts out to the car.  I'm always very careful with things like this because Gavin has almost zero awareness of his surroundings and I don't want anyone getting hurt and I can't afford to have him break anything either.   Granted it…

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November 21, 2016
Read more about the article Why #sensory issues kept my son home from school today
Emmett John / Sensory / Shoes and Socks

Why #sensory issues kept my son home from school today

Emmett woke up this morning and was so sensory sensitive, he barely tolerated his pants and shirt.   He was able to wear his clothes for the most part but when it came to shoes and socks, there simply wasn't any wiggle room.  Emmett loves school and doesn't want to stay home but at the same time, he's so overwhelmed by his sensory processing issues that he couldn't even compose himself.   Unfortunately, we had to take Elliott to school and we were already running late.  Lizze and I decided that with an inch of snow on the ground, that it was too cold (27°F) for him to wear his flip-flops to school.  We offered to have him just wear his slippers to school and then bring his flip flops…

15 Comments
November 21, 2016
Gavin / Mission Debriefing / Schizoaffective Disorder

Heartbreak: A conversation with my schizophrenic child

Gavin suffers from a disorder known as Schizoaffective disorder. This is kind of a blend between bipolar disorder and schizophrenia. We see way more schizophrenic symptoms than we do bipolar anymore. Gavin has been in a state of psychosis for many months now and shows no signs of pulling out of it. The other night, Gavin and I were playing Minecraft together on the Xbox, as we do on most nights before he goes to bed. It's something he really enjoys and I can use the game to help teach him things that are harder to teach in real life. It's just become one of our things.  While we were playing the other night, Gavin decided to share what had happened back at base. When I say back at base, it refers to…

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November 20, 2016
Read more about the article Encourageing creativity 
Elliott

Encourageing creativity 

Elliott spent some time being creative this afternoon and that's something we strongly encourage.  He took mismatched Lego pieces, parts from a few other things and used them to create his own replica of BT and his Pilot from Titanfall 2.  This is pretty darn creative and I'm really proud to see him do something other than play video games or his tablet.   Awesome job Elliott. 

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November 20, 2016
Read more about the article I think I can I think I can 
My thoughts

I think I can I think I can 

Gavin seems to be feeling a little better as the afternoon begins. He's still off but he's always off to some degree.  Elliott and Emmett have been bouncing off the walls this morning. We have our first snowfall of the season and I think that has them really excited.  Gavin's currently sleeping and that's a good thing for a few reasons.   Life is hard for him and he needs the rest If he's sleeping he can't be walking around and he can't hurt himself when his legs give out When he's sleeping, he can't talk me to death. That last one is a bit on the selfish side but I'd be lying to you if I neglected to mention that him sleeping gives me a reprieve from his incessant…

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November 20, 2016
Read more about the article It’s been a really rough morning
Gavin / My Crazy Life

It’s been a really rough morning

Today began way to early because Emmett climbed into our bed after a bad dream and essentially banished me.   A bit later, he moved back to his room but then to the hallway where he likes to sit and play his tablet.   The next thing that I know, he was delivering a message from Gavin.   At some point last night, Gavin had experienced something very unpleasant.. I won't go into details but I will say that I don't know if this is just one of those things or if we need to worry about.   Please keep Gavin in your thoughts and prayers. . 

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November 20, 2016
Elliott / Emmett John / General Medical Stuff

DON’T MISS: Important Update on Elliott and Emmett

It's time to play a little game called catch up. When we met with Dr. Reynolds last week, we also made some decisions about Elliott and Emmett. Unfortunately, I got tunnel vision with all that was happening to Gavin that I never got around to this.  After speaking with Dr. Reynolds about both Elliott and Emmett, it was decided that we would be removing all of the medications, with the exception of their ADHD meds. There were several reasons for this but the main one is that the medications don't appear to be doing anything.  Over the next 15 days, we will be weaning them off of these meds as per Dr. Reynolds instructions. I don't expect to see any negative changes in behaviors as a result. There is a very…

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November 20, 2016