A 10 year journey comes to a heartbreaking conclusion today

Let me just say that I hate Mondays and nothing that has happened so far today, is going to change that. 

The boys made it to school this morning will only a few hangups but nothing major. 

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I rescheduled Maggie’s appointment for Wednesday and made it to Dr. Reynolds office on time and with Gavin in tow. 

This is where the good news ends. 

After a hard fought, 10 year journey to discover the cause of Gavin’s continued regression,  he’s finally and officially been diagnosed with Childhood Disintegrative Disorder

I’ll explain the details later but for right now,  there’s a huge cloud hanging overhead. 

This has been on the table for awhile but no one was comfortable pulling the trigger on this until now.  CDD is extremely rare but Gavin without question meets the criteria and everything else has already been ruled out at least once. 

Right now I’m sorta processing everything and will write more as I can.  😦

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18 Comments on "A 10 year journey comes to a heartbreaking conclusion today"

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Oh, no 🙁 I’m so sorry 🙁 I know it’s been on the table for a while, but that doesn’t make it any easier to hear. I’m so sorry. Heartbreaking indeed 🙁

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Hang in there The Autism Dad! Try to keep having faith! Prayers for peace and love sent your way!

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What will you do now?

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Very tough news, try to be kind to yourself.. Gavin needs you but you need you too.  xx

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Hang in there, so sad, I don’t know you personally ,but I fell you very close to my heart
Lot of hugs !

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Keep your head up. Sending prayers to you and your family.

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Oh, no 🙁 I’m so sorry 🙁 I know it’s been on the table for a while, but that doesn’t make it any easier to hear. I’m so sorry. Heartbreaking indeed 🙁

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Hang in there The Autism Dad! Try to keep having faith! Prayers for peace and love sent your way!

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What will you do now?

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Well not the answer you wanted but an answer nonetheless. Make the most of the time you have. Make that wish. 😉

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Very tough news, try to be kind to yourself.. Gavin needs you but you need you too.  xx

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Hang in there, so sad, I don’t know you personally ,but I fell you very close to my heart
Lot of hugs !

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Keep your head up. Sending prayers to you and your family.

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You are the best parent in the world and Gavin is very happy to have you. Keep on loving and hugging those boys they would be lost without you!!!!!

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Well not the answer you wanted but an answer nonetheless. Make the most of the time you have. Make that wish. 😉

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You are the best parent in the world and Gavin is very happy to have you. Keep on loving and hugging those boys they would be lost without you!!!!!

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NikkiSchwartzVB @The_Autism_DadWow so sorry to hear!It may explain a lot but hurts no lessU0001f614.You wrote a powerful piece.May you be blessed

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NikkiSchwartzVB @The_Autism_DadWow so sorry to hear!It may explain a lot but hurts no lessU0001f614.You wrote a powerful piece.May you be blessed