Nothing worked because everything hurt

Sensory processing disorder has gotten the best of us today. Mr. Emmett woke up after a night filled with nightmares, completely overwhelmed. In his nightmares, he’s being eaten alive and can’t wake up.

Emmett’s daily life is often dictated by his sensory issues. Today was particularly bad because he woke up, already overloaded, and not standing a chance.

More often than not, Emmett will struggle with his clothes in the morning, but we can work through it. On these days, Emmett has enough resources in his coping bank account to help him through. Unfortunately, there are some mornings where this coping bank account is already overdrawn.

He was very clearly overdrawn this morning, and he wasn’t able to tolerate wearing a shirt.



We worked to help him through this from 7 AM – 8:35 AM, but nothing worked. The school said he could wear any shirt he needed to, even if it wasn’t dress code.

By the time we had to call it quits, and get Elliott to school, we had worked with over fifteen different shirts. Nothing worked, and everything hurt.

I’m now devoid of anything resembling motivation or energy.



Emmett ended up staying home, and I don’t like the idea of him missing school. At the same time, wearing a shirt is causing him extreme levels of distress today, and forcing him to wear one would be cruel.

Read This  Yay... Elliott has graduated to soup
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Jenny
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Jenny

The number is days is 42 Mr Gorski, not counting the times late and early pulls from school

Jimmy Rock
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Jimmy Rock

Wow, OK. Apparently somebody’s keeping the numbers…Anyway, sorry that the sensory issues won the day. Quick question though — you talked about drawing the line where you stop trying to work through it. What dictates where the line is drawn? Is it an amount of time? The severity of the reaction? Your knowledge of his potential sensory capacity based upon recent events? Your particular patience/tolerance level that day? I agree that there has to come a point where you can’t continue to force it. Just wondering how you determine what that point is – because I agree – the longer… Read more »

Jenny
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Jenny

The number is days is 42 Mr Gorski, not counting the times late and early pulls from school

Jimmy Rock
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Jimmy Rock

Wow, OK. Apparently somebody’s keeping the numbers…Anyway, sorry that the sensory issues won the day. Quick question though — you talked about drawing the line where you stop trying to work through it. What dictates where the line is drawn? Is it an amount of time? The severity of the reaction? Your knowledge of his potential sensory capacity based upon recent events? Your particular patience/tolerance level that day? I agree that there has to come a point where you can’t continue to force it. Just wondering how you determine what that point is – because I agree – the longer… Read more »

kimmy gebhardt
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kimmy gebhardt

I have a question- do you try to keep him in clothing during the summer or is summer clothing optional time? I’m curious if a break would be a good or bad thing, or would it even matter at all?

The Spectrum of Life
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The Spectrum of Life

Re where do you draw the one, I think you just know. At least that’s the case with my 2. Each day is different and their ASD reflects this, so some days you can work it out but the same issue the next and it’s just not gonna happen. Not sure if I’m making sense but as an asd parent you tune into them and get a feel for their coping abilities and how far you can push…

It’s an incredibly tough gig and having judgements such as how many school days are missed really doesn’t help.

Kim
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Kim

@spectrum of life- I brought up the days missed the other day; not out of judgment but because Emmett has missed about a month’s worth of school and I was wondering where the school (and State) drew the line. As it’s a charter school, I would be concerned that my child was going to be asked to leave so his spot could be given to a child who might attend more frequently and get a bigger benefit from it. The other concern was when would Ohio say ‘enough is enough’ and not allow him to pass to the next grade.

kimmy gebhardt
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kimmy gebhardt

I have a question- do you try to keep him in clothing during the summer or is summer clothing optional time? I’m curious if a break would be a good or bad thing, or would it even matter at all?

The Spectrum of Life
Guest
The Spectrum of Life

Re where do you draw the one, I think you just know. At least that’s the case with my 2. Each day is different and their ASD reflects this, so some days you can work it out but the same issue the next and it’s just not gonna happen. Not sure if I’m making sense but as an asd parent you tune into them and get a feel for their coping abilities and how far you can push…

It’s an incredibly tough gig and having judgements such as how many school days are missed really doesn’t help.

Kim
Guest
Kim

@spectrum of life- I brought up the days missed the other day; not out of judgment but because Emmett has missed about a month’s worth of school and I was wondering where the school (and State) drew the line. As it’s a charter school, I would be concerned that my child was going to be asked to leave so his spot could be given to a child who might attend more frequently and get a bigger benefit from it. The other concern was when would Ohio say ‘enough is enough’ and not allow him to pass to the next grade.

BeckyW
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BeckyW

I’m guessing the nature of your sons’ disabilities is why they are given leeway into missing school.

BeckyW
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BeckyW

I’m guessing the nature of your sons’ disabilities is why they are given leeway into missing school.