My experience with Wishes Can Happen this morning was quite profound. I’m completely emotionally drained and physically exhausted. At the same time, it was for a very worthwhile and and well worth the fallout.
I’m not sure if people understand how difficult it can be to talk about one of the most horrible thing any parent can imagine, a child with a life-threatening or terminal illness.
There are times that I’m able to live in a bubble and pretend that we are a normal family. I hate the word normal but in this case, I mean a family who’s child isn’t facing a life or death illness, with no hope for a cure.
This bubble I sometimes retreat to is born out of necessity. It’s purpose is to help me survive a life in which it’s likely I will outlive one of my kids. It helps me to hide that pain from everyone and be the father/husband/brother/son my family needs me to be.
The downside is that people don’t realize how much pain I’m in.