"I can't adequately express how much this kills me. As his father, it's so hard to know that he's going through this and there's very little I can do to about it"
"Gavin had a really good IVIG infusion this morning. He's gaining a little bit of weight so there's more body fat on his tummy to make needle placement less painful."
"There are two things we need to talk about. The first is the latest lab results for Gavin and the second is a different approach we're taking with the Clozapine."
"I'm going to be very honest with you guys. I'm not coping well with Gavin's current physical and emotional health struggles"
In Gavin's case, he has to have needles stuck into his belly twice a week in order to deliver the GAMMAGARD that provide him with a functioning immune system
"Right now I'm feeing like my world is crashing down around me. I'm sick to my stomach and I'm strattling a very fine line between bursting into tears just freaking out."
"At the risk of sounding like a terrible parent, I'm going to admit that my oldest son Gavin, is driving me absolutely bat shit crazy. Some would argue that's a short trip and frankly, they're probably right"
"With that in mind, I'm going to just hope for a nice balance of shit and rainbows... This is especially true in regards to Gavin's and all he's going through."