We’re missing a critical delivery

Alright, so we have another little problem. With all the craziness going on in regards to Gavin’s detachment from reality, we overlooked that Gavin’s IVIG infusion supplies haven’t arrived yet.

This is not a huge deal at this point, but we’ve been having issues with nationwide shortages of his IVIG medications recently.

We’ve had to switch meds a few times in the last year, and that’s not a good thing. There was a temporary issue with his previous delivery being delayed a week, but the supply was replenished, and his delivery received.



I’m waiting to hear back from the supplier. Usually, we get his supplies the week he runs out, so it’s not unheard of for them to arrive on the actual day his infusion is due to happen. It’s just unnerving due to all the shortages recently, and we get a bit anxious towards days like today, where he needs his infusion but is out of supplies.

1 comment



    • Cindy on April 12, 2019 at 3:30 pm
    • Reply

    Is Gavin able to continue receiving his medication this way? I recall reading something about him having trouble with it and may have to go back to the IV method because of his weight??

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