I just wanted to share a cute picture of my tiniest minion, Mr. Emmett. Lizze and I were going to bed last night and bam, there he was. He'd made himself comfortable after flinging the blankets everywhere.. lol He's such a handful but so sweet as well. ☺
This week will find us returning to the Cleveland Clinic for Gavin once again. This time it's for an epilepsy appointment with his neurologist. He's scheduled for a 3 hour EEG. This will hopefully give us an idea of where he is in regards to his seizure activity. Gavin has always had absence seizures and they are very hard to detect. Most commonly, when these occur, he will appear to be staring off into the distance. He's not aware of anything happening but he's not even close to someone who can accurately describe what he's experiencing. Kids with Autism can also have staring spells and it's not related to seizure activity. Unfortunately, in Gavin's case, he was diagnosed with epilepsy many years ago but thankfully, it's never been a major…
It was a really weird night and I woke up feeling like shit. I was up with Emmett on and off throughout the night. He was having nightmares and I did my best to comfort him, even at the expense of my own sleep. Thankfully, he's feeling great today and he's full of energy that I wish I could have some of. Apparently, the boys are going to their Grandparents for a bit today and that's awesome. We pretty much desperately need the break. We're very grateful for the time to ourselves. ☺ At the moment, I feel so poorly that Lizze is sending me to go lay down. Hopefully, I'll feel better when I wake up.
I can't believe I'm telling you this but in the spirit sharing, I wanted to explain where I've been today, or rather why I haven't written. First of all, I've been home. ☺ I've never mentioned this before because it never occurred to me that it was relavent. The only reason it is now is because it was something causing me significant stress. It's really stupid but I have/had a sebaceous cyst on my back. It's smack dab in the middle and right in line with my spine. It's small, maybe the size a marble but due where it's taken up residence, it's become bothersome. It's nothing serious because people get these all the time. My doctor checked it out and it's nothing to worry about. While that is true,…
Our goal for today is to get the house ready so we can put up the Christmas tree. The kids are chomping at the bit to get the tree up. I promised we would get that done this weekend and they are holding me to it, every single minute they are awake. lol Once we get it all set up, I'll post some pictures. I'm hoping this enthusiasm carries into getting other areas of the house ready for Christmas as well. ☺
Today marked the third time in a row that Gavin has done his own IVIG Infusion, start to finish. I can't tell you how proud of him I am. When I look back 5 or 6 years, I remember how much he struggled with needles. It would literally take half a dozen people to draw his blood. The experience was awful for all of us but especially for Gavin. Now he goes in and has his bloodwork done on his own while I wait in the car. The last major obstacle he needed to overcome was starting his own IVIG Infusion and that required placing the needles into his belly. He's wanted nothing to do with that until recently. For the third time in a row, Gavin has done it…
No one's life is perfect and I'm certainly claiming mine is worse than yours. I'm simply sharing what is causing me a great deal of stress. Being an Autism parent is stressful enough on the best of days and unfortunately, there aren't too many the best of days. Between lack of sleep and the demands of three special needs children, life can feel unfairly challenging. Ironically though, what tends to stress me out the most are the things that could be considered everyday problems. Things like dealing with my mortgage company selling the mortgage to another mortgage company how is a nightmare to work with. I've been trying to make a payment for two months now and they keep screwing it up. I've authorized payment 4 different times in November…
It was one of those mornings where Lizze and I slept in a little later than we should have. Once we got moving, the boys did well and off to school we went. Thank God the lunch plans I made for the boys last night worked out because I was worried about what they were going to eat for lunch today. I'm feeling really positive about the way we started the day. Hopefully, this trend will continue through the rest of the day. 😀