Did you know one of my kids has #epilepsy?

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This week will find us returning to the Cleveland Clinic for Gavin once again. This time it’s for an epilepsy appointment with his neurologist. He’s scheduled for a 3 hour EEG. This will hopefully give us an idea of where he is in regards to his seizure activity.

Gavin has always had absence seizures and they are very hard to detect.

Most commonly, when these occur, he will appear to be staring off into the distance. He’s not aware of anything happening but he’s not even close to someone who can accurately describe what he’s experiencing.

Kids with Autism can also have staring spells and it’s not related to seizure activity.

Unfortunately, in Gavin’s case, he was diagnosed with epilepsy many years ago but thankfully, it’s never been a major problem. That being said, Gavin has been having periods of time where he loses his vision and doesn’t know what going on, more so than usual.

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At his last appointment, his neurologist said he didn’t think it was seizure related. He suspects that the lenses in his eyes have become detached and that’s what causes the blacked out vision. Apparently, this is something that can happen when people have Ehlers Danlos.

We’re doing the EEG as a precaution because we don’t know anything for sure and Gavin’s due anyway.

His next appointment is with the Cole Eye Institute and that will be after the first of the year.

Hopefully, my brother will be able to get our car fixed in time for us to make the trip on Tuesday. He says it shouldn’t be a problem at all and we are so grateful for his help. ☺

I’m not really worried to much about this appointment because it’s not likely to produces any new information that will send panic coursing through me. This should be a routine test and not a big deal at all. I’m going to pray for that anyway… ☺

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