Something I’m don’t know if I’ve shared before is that Gavin has connective tissue problems. Apparently, his Mom has a connective tissue disorder but that was diagnosed after she left and so I’m relatively in the dark on that.
Gavin is extremely hyper flexible. Some of the things he can do are actually cringe worthy and hard to watch.
I’ve known about that forever and that’s one reason why he was in OT/PT and is currently back on the waiting list.
The problem he’s been having recently is that his shoulders and hips pop out. It’s very painful and just sorta happens randomly. He could be running around and be just fine but he could have his shoulder or hip pop out while climbing out of bed in the morning.
While I don’t believe there is really anything that can be done, he will be seen by the Pediatric Rheumatology at the Cleveland Clinic next week.
These issues seem to be happening more often lately and it’s causing him distress. This appointment will help to ensure that everything that can be done is being done. At the very least, we can learn more about this problem and perhaps some things we can do to help him.
I truly hate that he must endure as much as he does but I have to say that he takes each challenge in stride and never, ever complains.. He’s a super tough kid and I couldn’t be any prouder. That being said, if there’s anything I can do to make his life more comfortable for him, I want to know what it is so I can make it happen… 😀