There comes a point in my journey as a special needs parent, where I truly find myself in a place where I don’t know what to do. I’ve found myself in one such place and I don’t know what to do.
Gavin is reaching a point where in many cases, it’s think to breathe.
God love him because he tries so hard but some of things he does just makes me want to scream. Here’s something that happened yesterday that had me wanting to literally be able to climb inside his head and experience his thought process because I’m at a complete loss.
Gavin’s been having serious bladder issues and the medication that’s supposed to help, isn’t.
There has always been a rule in the house that significantly limited Gavin’s ability to touch food that someone else will be eating. He’s not allowed to grab his own bread for a sandwich or get his own grapes out of the giant bowl in the refrigerator.
I’ve always felt bad about this but there’s a very good reason for this rule to exist. When it comes to Gavin, you never know where his hands have been.
Yesterday, he was walking through the living room I witnessed something that reminded me of at least one place his hands are um…..visiting. When his hand returned from the trip it was on, he smelled it. Teenage boys in general do some really weird stuff but this was a little beyond what I would consider normal teenage weirdness.
I just sorta reacted without thinking and asked him why the heck did he just do that? He got upset at me as though that was an intrusive question. I simply told him that he’s not in trouble but he needs to do anything and everything revolving around that area of his body in private.
He told me that this is how he checks to see if he’s had an accident.
I was all like, are you saying that you can’t tell if you had an accident unless you smell yourself? As far as I know, he’s not having accidents. This shows just how reduced his thought process is anymore. There’s obviously better ways to figure these things out and we spoke about that.
All I want him to understand is that you can’t do that shit in front of people. Go to the bathroom and check if you need to but for the love of God, wash your hands.
This is exactly why that rule exists. You just never know. Gavin just doesn’t think about hygiene but it’s not from lack of trying to instill that in him. He’s just oblivious.
I keep hand sanitizer thoughout the house and I think I will just have him wash his haspnds at random intervals. We also need to get this bladder thing figured out and if possible, corrected because he truly is miserable. I’m just afraid that this isn’t correctable…😕