I’m completely lost and don’t know what to do

When Emmett came home from dinner with his Mom last night, I noticed that he felt warm.  I checked his temperature and he was just shy of 102°F.

Aside from being grumpy, he’s asymptomatic but regardless, the fever is still there. 

Assuming this is a fever disorder related fever and he’s not sick or getting sick, this is the longest fever cycle he’s ever had.  This has been going on for at least 6 weeks now and I don’t know what to do. 

If I take his temperature at random intervals throughout the day, he would likely be running a fever, at least to some degree. 

I know this because I see it every day.  Even the school is seeing this as well. 

He bounces between normal and running a fever all throughout the day but he hasn’t actually been sick since this cycle started almost 2 months ago now. 

I’ve had him to his specialist and at this point, there’s nothing we can do. 

All schools have policies in regards to fevers and Emmett exceeds the limits of this policy almost every day.  The school is working with me on this and have sorta adjusted the policy in regards to Emmett but they can only push it so far. 

102°F fever is well outside the adjustments and doesn’t really leave any wiggle room. 

In fact technically, a child has to be fever free for 24 hours, without being medicated for it, before they can return to school. 

Even if he’s not actually sick, this has to be taking a toll on him..  I feel like shit when I’m running a fever and yes, I know I’m sick when I’m running a fever but just running a fever is exhausting.. 

I don’t know what to do…  I don’t know if I should keep him home or send him because there’s no way to know for sure, if this is a flare or if he’s actually getting sick. 

I’m worried and at a complete loss. 

Aside from tracking this and following up with his doctor, I don’t know what to do.  I hate that I’m facing this alone now because I never have a second set of eyes.

I have spoken to his mother about this but honestly, how much help can she be if she only spends maybe 48 hours and 2 dinners with him every month? She can only really go on what I’m telling her and sorta defeats the purpose of a second set of eyes. What she remembers from a year and a half ago isn’t relevant because everything’s different with this now and the symptoms have evolved.

I don’t mean to sound like I’m angry but it just sucks to be in this position.

Before all this shit happened with her leaving, we would be seeing the same thing at the same time and together decide what we felt was best.


That’s a luxury I no longer have and I really feel it at times like this. 

Regardless, I have to decide what to do and I haven’t a clue….

At this point, I’ll check his temperature again in the morning and if he’s fine, I’ll send him. If he’s running a higher grade fever still, I don’t think I really have a choice but to keep him home and reach out to his immunologist again.

I hate this and I hate even more than Emmett has to go through this and I can’t do anything about it.  It’s not fair to him…….none of this is fair to him…. 😕

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