The struggles we face while raising a profoundly cognitively impaired adult son

I spoke recently about some of the struggles we face while raising a profoundly cognitively impaired adult son. This morning presented me with yet another issue that was directly related to how Gavin handles things.

When we were at his gastro earlier this week, there were a few issues that came up as a result of Gavin’s limited capacity and poor memory. None of these things are his fault and while they would still be frustrating at times, it’s his reaction to being questioned that is really frustrating.

You can read the recent post about this appointment and the initial frustrations by clicking here.

It wasn’t until this morning that the other complications presented themselves.



Gavin’s doctor had asked about how he was doing with his Ensures. Gavin drinks one of these supplement drinks with each meal. The purpose is to help him at least maintain his weight but also gain some weight as well.

She had asked if he needed a refill. I was sure he was almost out and had a few days worth of these calorie drinks left. Gavin on the other hand, very aggressively insisted that he had a full unopened box, as well as half a box and 5 Ensures left in the refrigerator. It was oddly specific and so I thought, maybe he was right.

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tweetingWien
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Thanks for your blog. My daughter (24) works with autistic clients in LA public schools. I often sh… https://t.co/DFJEj7A6iL

BeckyW
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BeckyW

That’s too bad. I don’t understand why it’s so complicated to get the drink. If it’s a prescription couldn’t it be sent to a nearby pharmacy and you pick it up? Also, that’s weird that Gavin remembered it so specifically and wrong. If he did have a surplus, wouldn’t a new prescription just be held until he used up the old?

We have lots of prescriptions so we are always going to the Walmart Pharmacy drive-through. But we don’t have the complexity of what Gavin apparently needs. Anyway he should be okay but it’s got to be a frustration.

Kimmygebhardt
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Kimmygebhardt

I’m confused, are the Ensure drinks that Gavin drinks different from the ones you can get in the grocery store? Is there a reason why you can’t pick a few up to bridge the gap between now and when the pharmacy delivers his new cases?