I’m feeling a little better about today

I’m feeling a little better about today

I know we had a rough morning because I was there. That said, I’m feeling a little better about things because I’m seeing some positives.

First of all, Gavin’s IVIG infusion went very well. He’s struggling to do it himself, and for right now, I’m not going to push him. It’s easier if I do it for him, at least for the time being. There was no leaking today and I believe it took less than an hour to complete. By comparison, last Friday’s infusion took over four hours. This is definitely a positive thing.

Second, I called the school to check on the boys, and they seem to be doing okay. Both boys have been in their respective classrooms, and there’s been no contact with the office, meaning the boys haven’t asked to leave and are being managed by their teachers. That’s a step on the right direction for sure.

That doesn’t mean that everything is perfect, but it does help me feel like they’re at least managing. Right now, that’s as good as can be expected. I don’t know what to expect when they get home but we’ll deal with whatever we have to deal with.

I’ve already let their therapist know what was going on, and we are going to address what we can tomorrow during therapy. Until then, we’ll take things minute by minute if we have to.

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I’m just catching up. I had a small procedure at hospital so I’m getting over and through it. It sounds like you and all the people there have nothing but love and care for your sons. Honestly, it sounds like an awesome school.


Good for the kids. And you. They made it and now they know that they can do it, even with heavy hearts. It’s a victory.

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