It’s the only time I can break down

Gavin is getting more and more frustrated with himself over his disappearing abilities. I don’t really know how else to describe it. He hasn’t necessarily forgotten that he should know how to do things, but he’s forgotten how to do them. 

I can’t even begin to imagine what that’s like for him. 

While I’m overweight, my cholesterol is borderline, and I wage war with Depression, I’m otherwise blessed with good health. 



Gavin is experiencing things that would be more common for someone seventy years his senior. He forgets almost everything (short term memory) and easily loses track of what he’s doing. When it comes to the games he plays, he can focus, but getting him to draw a picture ends up being too much for him. 

We return to his neurologist at the Cleveland Clinic in September, and we’ll see what is what. 

I don’t know if there is anything more that we can do. Right now, it’s about trying to maintain where he is. That means lots of repetition, frustration, and patience. We have to keep him moving, his mind active, and learning as many new things as we can. 

Gavin is always willing to walk the track with me, and while he can struggle, he never gives up. He is so incredibly inspiring, and yet it’s so heartbreaking to watch him go through all this. 

This is the kind of thing that keeps me up at night because it’s the only time I can break down without stressing everyone else out. 

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