Maintaining hope in the face of such a dire prognosis



There’s no school today because God hates us. I’m kidding, I’m kidding. It’s the end of the grading period and it’s an in-service day for the teachers.

I’m not planning anything for today because I want to try and keep it as low key as possible.

Gavin’s dealing with a lot of confusion and low key will help to keep him for getting worked up.

We have an upcoming appointment with his Psychiatrist and this will definitely be the main topic. In fact, if this gets any worse, we’re going to get him an emergency appointment.



I don’t think there’s anything we’re going to be able to do but we will always try.

It’s not easy to maintain hope in the face of such a dire prognosis but what other choice do I have.

Childhood Disintegrative Disorder is so rare that there’s not much information our there about it. The only thing known for sure is that the prognosis is always bad.



Gavin’s confusion may simply be part of the CDD journey. 🙁

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About Rob Gorski

Father to 3 with Autism and husband to my best friend. Oh...and creator fo this blog. :-)

  

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