Once again, Gavin has been shorted supplies for his IVIG infusions. As it stands, he doesn’t have enough left to do his next infusion on Friday.
Rather than simply take care of it for him, I asked him to put a reminder on his tablet to go through his supplies and figure out exactly what’s missing.
Once he figures that out, he’ll report to me and I’ll call the hospital and put the order in.
It’s so important that Gavin be as involved in his health care as possible. He can’t make make his own medical decisions for obvious reasons but we want him to play as big a role as he’s capable of being.
Getting him to utilize his tablet for something other than games is important as well.
I’m teaching him to use our shared family calendar, to check and see when his appointments are. This way he doesn’t have to constantly ask me about when they are.
It’s an uphill battle but he did pretty awesome today.. ☺