Gavin’s doing better in this area

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I know Gavin struggles in most areas of his life. That’s just the reality of the situation and I won’t sugar coat or spin that. It’s frustrating as his parent because I find myself having to micromanage is life and I don’t want to be doing that.

Having said that, I have a spot of good news.

Gavin is doing better with his IVIG infusions. When his infusions started up again, after the medication shortage issues, he couldn’t do his infusions on his own anymore. Maybe too much time had passed and he forgot how to do them properly?



Truthfully, I don’t know.

I’m relieved to share that the last few infusions that have been done, he’s done entirely on his own again. He’s doing a very good job and it seems the practice is paying off.

He’s not wasting the medication while trying to get the air bubbles out the syringe.

Today however, he struggled. He did great putting things together and I only had to fix one minor problem.

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Suzanne Olsen
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Hope that can be changed where a nurse can help him feel relaxed enough to do this. It’s a phobia that can bring on a sensory overload.