Some #Autism parenting frustrations and obstacles – Page 2

Some #Autism parenting frustrations and obstacles

There’s always that internal struggle of dealing with anger and resentment because while he’s creating problems, he also doesn’t have a malicious bone in his body. At the same time, he’s the reason we are unable to get breaks.

I know I struggle with this quite a bit. I often catch myself getting upset and I have to snap myself out of it and calmly ask him to stop talking. It’s not always easy to do this because Gavin freaks out over every single mistake he makes and he makes a lot of them. There’s no getting through to him that everyone makes mistakes. I personally make enough mistakes for several people and I always try to point them out.

Unfortunately, that doesn’t help or at least it hasn’t helped much yet.

Last night, Lizze’s parents offered to try with all three of the boys again because they really want to help. If things go better, that might happen more often. For the record, Lizze and I absolutely agree that splitting the boys up is the best approach, as long as Gavin is creating these problems. Truthfully, it’s too hard on them and it’s too hard on the boys. It sucks but it’s the right approach.

Hopefully, things are going well. We haven’t heard anything and that can be a good thing. It may also mean that we’ll hear about it when they get home. Who knows but I’m trying to stay positive.

Lizze and I really didn’t do much last night because she wasn’t feeling well. We were asleep by midnight and awake by 7 AM. Neither one of us could sleep in.

We need to do some running around today, preferably before the kids get home. Everyone needs new bed sheets. We need laundry baskets, mats for the bathroom and a snow shovel. We have a pretty big winter storm coming and our snow shovel was stolen.

Elliott’s birthday is on Monday and he’s turning 13. That’s a big milestone. We want to do something special.

So that’s the tentative plan for today. I’ve no idea how things are going to go but that’s the direction we need them to go in.. ☺

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This is in answer to BeckyW response. I have an adult son on the Autism spectrum and I also retired from being a group home counselor in a group home for 9 years. In those 9 years the group home I worked in had a mixture of young adults to older adults with mental illness issues and also we had a few young adults with Autism. It was also a co-ed group home. What I can tell you from none years experience is first, mixing people with autism with people with serious and often potentially violent behavior problems is not, from my experience, the best fit. Every person that was placed in the group home I worked, had a great deal of trouble in dealing with the often chaotic behavior of some of the house residents with serious mental problems. All of us who have loved ones we care for who are on spectrum know that it can be extremely detrimental to an Autistic person who requires an environment devoid of as much stress as we can provide. We as parents and caretakers, to the best of our ability attempt to provide this. It’s not always possible as we all know. We all have different scenarios, different situations, different types of loved ones with different and varied degrees of autism. But in a group home, you have a certain amount of people living there, each with their own varied problems and each to different degrees and severity of their particular mental problems. I could tell a few stories of Autistic people who were under constant distress from, not all, but certain people with severe mental illness problems. So the one thing is for any parent or caretaker considering group home placement is to try to select only a group home specially design for only people on the Autism spectrum. This also includes group home personnel that are strictly experienced and trained to understand and know how to handle any problems that may arise with their autistic residents. Please check out every aspect of the group home you can and how experienced and knowledgeable the resident counselors are with people with autism. Being the parent of an autistic young man, there were a few incidents involving autistic residents that company rules would not allow counselors to handle in a way we felt needed to be taken. I broke some of the rules to handle certain things because I always looked at it as though this could be happening to my son as well as rules be damned, it needed to be taken care of. So my point is that my advise to any parent of an autistic person who is looking at a group home placement, please asks a lot of questions and although there is a privacy law engaged, you need to know if there are potentially violent people living there and if your loved one is verbal and makes complaints or you detect extreme depression that’s not related to being moved out of the home they have lived in and placed in a strange place to live out their lives, please be that pain in the ass parent or caretaker and check out anything that gives you worry. Eventually, when we are gone and if there is no sibling or family member who is going to step in to provide full time care and responsibility, the group home will be your only choice. Hopefully you will at least have someone in your family or someone close, to at least monitor their well being. It is not an easy road we travel as parents or caretakers of Autistic loved ones. And unfortunately, we can’t stay on this planet for their entire lives and many of us have to depend on outside agencies to take over the care of our handicapped children and family members. Sorry for the long reply but I thought some of my nine year experience working in a group home might bring something to the table.


Sometime in the last year or 2, I read that it was better to put a young adult, one with serious mental/developmental problems, into a group home/alternative living arrangement for disabled persons. Turns out that if the disabled one stays with parents until they die, it is far more jarring than if the disabled person goes to a group home in early adulthood.

Of course, this may not be the best for you all. But with Gavin so severely schizophrenic, and with your other sons with enough disabling problems, it seems like you all need a break. And Gavin might benefit from a different environment.

I don’t know anything, though. It’s just me throwing out something I read. I have no first hand knowledge. I certainly can’t judge you for whatever your choices are.

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