May 17 2019
We’ve made it to the illustrious Neurological Center for Pain at the always amazing Cleveland Clinic. If you ever visit here, you find yourself in the whitest building ever. Literally, everything is white. The walls, ceiling, floors, doors, cabinets, etc. It makes everything very bright. There’s a specific reason for this, and it’s related to …
May 17 2019
The boys got off to school in a good mood. I’ve got to say that was a significant accomplishment, and I definitely needed my walk this morning because I was frazzled. I will be spending the afternoon at the Cleveland Clinic with my amazing wife. She has a follow-up with her neurologist at the Neurological …
Apr 01 2019
I’ve got a laundry list of medication related updates for you all tonight. We’re going to briefly talk about myself, Lizze and Gavin because we’ve all had very recent changes to medication. Me It makes sense to begin with me, as I’m pretty straightforward. As I mentioned just prior to my oral surgery a little …
Mar 01 2019
We had a really interesting day today and actually, it was quite positive. We made some major progress in our quest to find Lizze some relief from all that she suffers from. I mentioned in a sorta offhand way recently, that Lizze has been using CBD oil and is scheduled to be evaluated for a …
Feb 12 2019
Lizze and I are getting ready to hit the sack because we have a really early day tomorrow. I wanted to take a few minutes and touch base with you fine folks because we have some positive news on the migraine front. ☺ First of all, Lizze had another bad reaction to the medication called …
Feb 12 2019
Lizze’s infusion has been going well for her today. She’s slept through a large part of it and I’ve just been sitting in the lobby waiting. They’ve decided to once again try the medication that caused problems yesterday. This time it’s going to be more diluted and will probably take about two hours to infuse. …
Feb 12 2019
It’s been a busy morning already. Lizze didn’t sleep very well. She’s in a lot of pain and extremely nervous about her second Infusion today. It’s very hard to be hopeful when you’ve been in so much pain for so long and nothing has ever been able to help. I’m trying to get her to …
Feb 12 2019
It’s been a really, really long day and I’m going to make this a quick update. I want to let you know how the first day of headache infusions went for Lizze. It’s been a mixed bag for her. For starters, the Cleveland Clinic is amazing and the staff made Lizze feel very comfortable with …
