Just a day in the life of a Special Needs parent

The goal for this morning is to get the kids to school on time and if I’m lucky, in a good mood. ☺

Immediately after that, I have to run Gavin across town for what will end up consuming the rest of my day. That’s right, he needs his Monday morning bloodwork again. This is how we are monitoring whatever is going on with his blood.

Here’s how this will go down.

Gavin will get his bloodwork done about 8:30-ish AM. From that point on, my anxiety will be through the roof because I’ll be awaiting the results of his labs. The results will tell us how our week is going to go. If they’re bad again, the focus will be on figuring out what, if anything we can do. If they’re better than bad but not really good, that will end up being a relief. That’s the best case scenario, at least realistically.

I probably won’t get the results back until late afternoon, so you can imagine how much fun I’m going to have while I wait. I’ll likely be on edge and my nerves raw. I’m going to have a very hard time focusing on anything else because of how serious this all is.

Having said that, I’m going to pop in or on, one of the awesome wireless headphones/ear buds I’ve been unboxing, and make music my best friend for the day. Music helps me center myself and I know I’m going to need centered if I want to make it through the day.

My expectations are not very high for the day but I’m not going to give up either.

It’s important that I’m realistic about things but at the same time, continue fighting the good fight, regardless of the odds.

This is simply a day in the life of a special needs parent. There are many of us out there and we are exhausted, overwhelmed, stressed out beyond all imagination, worried and sometimes even losing hope. Every single day, we wake up knowing how challenging each minute is going to be but we do it because we love our kids. We put on a smile to hide our fear and we keep moving forward.

It’s not always pretty. It’s certainly not perfect, but it’s our life and the lives of the most precious things in our world. We learn to make the best of it.

Today is just another day in which I’m going to have to hunker down, draw strength from the knowledge that I’m doing everything humanly possible and keep reminding myself that if anyone can pull this off, it’s going to be me.. ☺

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
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