I told him that we were not going to complain about anything while we were here. If he wanted to talk about it on the way home, that would be fine but as long as we were here, he wouldn’t say another word about IV’s.
This isn’t the first time we’ve been in this infusion lab, while Gavin complained about getting an IV and the kid across the hall is receiving chemotherapy.
Gavin doesn’t mean to hurt anyone and while he looks eighteen years old on the outside, he’s about six on the inside. He lacks self-awareness and really doesn’t grasp the concept of how his words or actions might impact those around him, similar to someone who’s actually only six years old.
Life is all about perspective. I’ve said that a million times. The reality is, Gavin is dealing with more than most will in an entire lifetime. He has multiple health problems that have come close to ending his life in the past and could realistically do so at anytime. We’re very aware of this. The stress, fear, worry and pain we experience on a daily basis, are things I can’t really put into words.
At the very same time, there are few things in life that can provide you with more perspective than spending time in a hematology/oncology, outpatient infusion lab. Even with all we go through, it’s nothing compared to what these brave kids and their families are enduring.
I’m not usually someone who believes in apologizing for my special needs kids. They are who they are and should never apologize for things outside of their control.
Having said that, my deepest apologies to anyone who may have been hurt by Gavin’s words yesterday. He would never say something with the intention of causing anyone pain.