This is a perfect example of why being a #specialneeds parent can be so exhausting, frustrating and overwhelming



We were not shorted, the problem is that Gavin somehow misplaced or lost them. I don’t know how he could possibly lose them but he found a way.

Noone else in the house has access to the supplies and Gavin is the only person who puts his IVIG Infusions together.

The reason I’m so upset, aside from the fact that he’s missing the supplies is because I just had an unpleasant conversation with the supply company about being shorted last month.

I hadn’t been there when the supplier dropped them off for September and therefore didn’t end up checking them. We were shorted supplies and I had to call them to send what was missing. They weren’t happy about it and accused me of losing them.

Now I’m seriously wondering if we were actually shorted or if Gavin’s fucking lost them as well. We recently caught him throwing tubing away by mistake.

We’re currently tearing apart the dining room and the back room to try and locate them. I’ll have to pay out of pocket if we can’t find them and this is highly specialized equipment. It’s expensive and it shouldn’t have happened.

Going forward, we’re going to have to restrict Gavin’s independence in this area by locking the supplies up and physically handing him what he needs, when he needs it.

Hopefully, nothing was thrown away and it’s just been misplaced. I’m not happy and this isn’t how I wanted to start the day. If you read my last post, I’ve made it clear that I’m already in over my head. I don’t need this right now.

What makes this even harder is that I’m trying really, really hard to not lose my cool with Gavin because he’s not doing any of this on purpose. He’s not trying to lose anything or be difficult. This is outside of his control and yelling at him isn’t going to be productive, even if it might feel good in the moment. I’d feel like shit afterwards and I don’t need that either.

Parenting a special needs child is very difficult. Parenting an adult child with special needs just might even be more challenging.

I have to remember to breathe.

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