We’re going to put all the vials together, and show how much medication is needed to keep someone like Gavin from getting sick, or worse.
We talk about this every single time he has his infusion, which is twice a week.
Yesterday he asked me what day we were going to stop collecting the vials. He didn’t remember ever knowing that we were done on the 4th of July. I wanted him to try and figure it out on his own, so I was giving him prompts, or clues.
Unfortunately, he never remembered and I had to tell him.
It’s heartbreaking because Gavin used to have the most ridiculous memory. He remembered absolutely everything, especially times, dates, and events. He could tell you what day his birthday fell on for all his past birthdays. It was amazing.
Now we’re lucky if he remembers the four digit pass code for the front door.
I have to be his memory anymore. One of my projects in the very near future is to help Gavin utilize his tablet for more than just games. I want him to learn to set reminders, and maybe even leave himself video messages to remind him how to do certain things.
I need to get him a smartwatch, so the reminders show up on his wrist throughout the day, and he can gain a bit more independence. I know that would make him feel good about himself.
Maybe he’d be better off with a smartphone. I don’t know. It doesn’t really matter.
The point is, things are getting worse for Gavin and it’s getting impossible to hide from that truth anymore.