An important update 

      32 Comments on An important update 

I want to do a general update, and this time focus on Lizze. It’s been awhile since I’ve really talked much about how Lizze is doing, so I thought I should correct that. 

As you may or may not remember, Lizze was taking a series of three, very intensive, outpatient therapy-type classes. These are designed for people with PTSD, Bipolar Disorder, and Borderline Personality Disorder. Lizze has both Biolpolar and PTSD. These classes have been enormously beneficial for her. 

Unfortunately, after all three classes were approved, and she was halfway through the second one, insurance decided to no longer cover this therapy. 

They didn’t provide a reason other than it wasn’t beneficial. 

The staff at the Cleveland Clinic/Akron General fought to get this overturned but were met with the impervious red tape that hampers our health-care system. 

There’s nothing we can do and she’s officially no longer in therapy there. 

Read This  The boys did awesome today

This came as a huge blow to her because these classes were really helping her to better manage her mental health and everyday life. 

Putting the above aside, she’s struggling a bit physically. I’ve mentioned before, and she’s shared on her blog, that ehlers danlos is something that continues to be a problem for her. It will always be a problem, because it’s not curable. 

Ehlers Danlos is a connective tissue disorder that causes extremely lose joints. As a result of this painful disorder, her extremities dislocate all the time. 

Her hip can pop out, simply getting out of bed in the morning, when this happens, it makes a horrifying pop sound, and it hurts like motherfucker. It’s not uncommon for her shoulders and elbows to dislocate as well. 

One of the most painful and disruptive issues she’s dealing with recently, aside from Fibromyalgia and chronic migraines, is pain on the bottom of her feet. My guess is it’s something like planters fasciitis, which is apparently common in people with Ehlers Danlos. It’s a very painful inflammation in the tendon that connects the heel to the ball of the foot. We’re working on getting her checked out. 

Read This  We barely made it through our little sensory crisis this morning but we did :) 

All of these things take a heavy toll on her. 

While I’m not inside her head, from the outside, she seems to be coping unbelievably well with all this pain and discomfort. She’s a lot tougher than I am, that’s for sure. 

I don’t know how she deals with all of this and everything related to the kids as well. 

This is just a little bit of insight, and I would encourage you to visit her blog by clicking here. Things have been so tough on her, that writing has been a very difficult thing for her to keep up with. It’s something she’s trying to get back into doing though.