How Gavin’s appointment went and why I’m so overwhelmed

We discussed the other issues Gavin’s been having also.

The blood disorder is not something he deals with and we will continue our current investigatory path in regards to it.

We also talked about his visual disturbances. This isn’t referring to the ones related to Schizophrenia but rather the physical issues with his vision.

Apparently, people with Ehlers Danlos can experience this particular symptom. It’s not related to migraines or hallucinations. Both of those were things we had considered as possibilities, and they make sense.

He’s suspecting the issue may be the lens in Gavin’s eye/eyes, may have become dislocated. This isn’t something easily detected. He explained that you would have to actually go looking for this in order to find it. That would explain why Gavin’s eyes have been checking out as being okay.

We also need to go back for new neuro-psych testing. This was done years ago and he wants to see how much Gavin has either improved, stayed the same or gotten worse. This is the most objective way to accomplish that.

The testing takes about six hours and Gavin had a very difficult time with it last time.

We need to see if there’s any deviation from the previously established baseline. This will give a an idea of how to better help him.

Finally, Gavin has to come back for an EEG. This is in regards to his Epilepsy and it will help us gain insight as to whether or not he’s still having seizures. He has absence seizures and they are very hard to detect outside of an EEG.

All these things are happening in the near future, especially the thing with his eyes.

I’m not sure if that is something that would require surgery or not. We don’t know anything about it but I will be researching later today.

I don’t know how to articulate just how overwhelmed I am with everything.

There’s been so much that’s happened in the last few weeks. The issues with Gavin’s blood isn’t getting better. We recently had to put our cat down that we’d had for almost thirteen years. Exactly one week after putting Cloe down, Lizze’s Dad almost died from a massive heart attack.

We have this trip and many unknown factors surrounding it now.

Everything is weighing on me heavily and my war on Depression isn’t going so well for me lately. Depression is definitely kicking my ass right now and there’s not a great deal I can do but work on processing everything.

Meds will only take me so far. I need to work through some of these things in order to regain controlling interest in my life.

I’m tired, overwhelmed and have to do this all again today.

Rob Gorski

Full time, work from home single Dad to my 3 amazing boys. Oh...and creator fo this blog. :-)
0 0 votes
Article Rating

Join The Conversation

This site uses Akismet to reduce spam. Learn how your comment data is processed.

most voted
newest oldest
Inline Feedbacks
View all comments
Becky Wiren

At least you are doing something by taking Gavin to doctors/health pros. And it’s all you can do.

Rob Gorski

Thanks Becky. All we can do is our best…

Becky Wiren

At least you are doing something by taking Gavin to doctors/health pros. And it’s all you can do.

Rob Gorski

Thanks Becky. All we can do is our best…